I am so pissed right now, my BCR in May was 0.011. and at that time my Onc said that if I didn't go below 1% he would want to switch my TKI from Gleevec to something else. So when my next BCR appointment came up and they did't have my results i was very upset. ( the May results were also not in time) They told me they would contact me as soon as they received them. I called them almost a week later and the nurse called me back and said that the doctor said that the result had dropped but they didn't they had gone up to 0.012 On August 8/13/2015 . Now I know this may not be a big increase but never the less its an increase and the fact that i had to find out after i requested the results in writing two months later is beyond Crap!!!
i am so pissed , I feel like i have inspect there work over and over. I need advice on what to do , my other two options are to switch Onc at this Cancer center or Switch to another Cancer center in town that is even busier.
Should I also consider switching TKI if I haven't hit undetected ? I have been on Gleevec since Sept 23r 2014