9 replies to this topic

[Kellyb333]

Hi, Kelly here. I don't post much, but am hoping to get feedback on this issue. I was dx 4/14, had a rough year on and off treatment due to myelosuppression and bleeding in retina and vitreous detachment. As of January I started going to Dr Cortes, by April my PCR was down to 27.5, was doing well and due to my own fault by July my PCR was at 60%. Continued on treatment, 300mgs Tasigna daily, until my WBC and neutrophils went too low and treatment was stopped in August. I was off treatment for 5 weeks, and resumed 2 weeks ago. My numbers have recovered into normal range and as of 9/1 my PCR was 40%, and was seen by Dr Cortes, also had a mutation test, which was negative. I am feeling much better. My concern is, my spleen area has been slightly uncomfortable, I can't feel my spleen but there is some pain. At dx my spleen was so big that it pushed my ribs out a bit! So, I know others have dealt with this, looking for encouragement!
Thank you , Kelly

[RayT]

I lost my spleen in 1982 due to staging for Hodgkins Disease, so I wouldn't know anything about CML-related splenic enlargement or pain  HOWEVER, I am a trained (professional???) paramedic and vaguely remember my instructors talking about this thing called the stomach, which is located in the same quadrant of the abdomen.  Make sure your pain isn't coming from gastric issues, such as an ulcer or hiatal hernia. Gall badder or kidney pain also can sometimes be perceived as originating in that region.

 

Seriously, make sure you mention it to your Doc during your next visit. A Gastroenterology referral may be in order.  Good Luck and keep us posted.

[Kellyb333]

Thank you, I appreciate that!!

[Trey]

The spleen is injured by the expansion and takes a very long time to heal.  Even after it heals it can give off pain signals, which I call "ghost pains".  The ribs are very close so they can press on the spleen especially when sitting or bending over.

[Kellyb333]

Thank you Trey!!

[tiredblood]

I get it from time to time and it is uncomfortable.

[tazdad08]

I agree with Trey. I'm 4 years into this journey and spleen pains...or ghost pains come and go. Sometimes to the point of going to the er to only be told that nothing is there. I dont run to the er over every little scare. Sometimes these pains are short lived, but some have lasted for weeks.

[Kellyb333]

Thank you Taz and Tiredblood!

[tiredblood]

Are sharp shooting intermittent pains in the hip bone common too?  I've had occasional sharp pains in my left hip bone that come and go, but one day last week, several times in one day I had really sharp, shooting pains in my right hip bone.  The pain on the right was intense, but was only intermittent for that one day.

[Kellyb333]

Yes, I do experience that hip pain, but on my right side!