While my pancytopenia initially recovered with a lowered dosage of Sprycel (50mg) my blood counts are now trending down again, with another blood transfusion in my foreseeable future. (HGB 8.2, Platelets 58, WBC 3.3 on 8/25/15)
PCR has also more than doubled in 7 weeks time.
4/1/14 - diagnosis -unknown
7/22/14 - 21.36
9/18/14 - 14.61
10/31/14 - 6.88
1/29/15 - 46.26
4/3/15 - 12.15
7/2/15 - 9.83
8/25/15 - 21.4
My doctor has returned me to 100mg Sprycel, and is referring me to a specialist. What specific questions do I need to ask the specialist?
I'm getting scared. Has anyone else here had such a poor response after 16 months of TKI treatment?