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Numbers still jumping around

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#1 Cathy


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Posted 26 August 2015 - 01:09 PM

Well I'm frustrated again. A little background Dx 5/2010 over 5 years been on all of the first 3 drugs. I'm on 70 mg sprycel right now they raised it again trying to get numbers back down about a year ago. Hasn't changed I was so so close to MMR last test. This 3 months back up again frustrates me to the hilt !  Last test was. .1163 , this one is .2553 so I'm just posting to let the newbees know for some of us the


Dr says as long as not an upward trend everything is okay stay on course. I had an upward trend for 3 test then it went down last 2 test now its jumping back up. My dr says he doubts I'll hit MMR on this drug but I'm not ready to change my side effects for new ones. All is fine just still frustratesme out on this blimps up and down.





DX 5-2010  Started normal hydra then Gleevec for 9 months stopped working

Tasigna after 5 pills pancreatis  numbers jumped up quickly

Started Sprycel 100, 8-2010  for a 3 years went down to 50 mg numbers at one point really jumped up quickly

currently on 70 mg for last 2-3 years trying to get onc to reduce dose Numbers never stabilize never MMR till 4-2017 bearly and jump up and down in and out of MMR stayed MMR for 3 months then

After 6 years on sprycel fluid on both lungs, drained still have some fluid on lungs, and currently off drug 4 months now

numbers lower then ever go figure I've never been this low of a number 

last 2 tests .0686 and .0181 !!


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