26 replies to this topic

[simone4]

Pat, I'm still suffering with hives.  I am taking atarax bid which is helping with the

itching.  I see onc. on Wed and I have been off Gleevec for two weeks.  He

will slowly increase the dosage back to 300mg.  My last PCR was .004 so I am

ok I guess.

My suggestion to you is to take a Benadryl and if it abates the itching, you know

it is an allergic reaction.  I know we started these drugs around the same time

6 years ago and now this!  Every morning I wake up and think of Dorothy Parker

"What fresh hell is this?"

The dermatogist has been useless and more useless each time I enter her office.

I am going to see my Allergist on Thurs.  I haven't seen him in years, but he is

a good diagnostician and maybe he can figure this out.

Me....Me.. Sorry, I hope you will try an antihistamine and the best lotion is

called Sarna.  It relieves better than even the Rx creams.  It is otc.

I hope we both find some resolution to our skin issues.

Take care.

Simone

[hannibellemo]

Simone,

 

.004 is great! Mayo doesn't even quantify if one is > 0.01, which I was at my last PCR this month.

 

Thanks for the heads up, I'll give Sarna a try. I'm pretty sure this is Sprycel because it is more of a burning sensation which is what I had when I first started Sprycel. Hopefully, this is on some kind of dumb rotation schedule and will pass like it did 6 years ago!

 

Pat

[gerry]

I went to a dermatologist in the first few months of being on Gleevec, all he did was give me a lecture on staying out of the sun, not worth the money I spent.

 

Keeping my fingers crossed for you that the allergist can come up with something.

[simone4]

Thanks Gerry, I hope so too.

[simone4]

Well, I went to onc. this morning and although the hives have been

better in the last 48 hours, they are still coming and going. He has reduced

my dosage to 200mg.  See what happens when I go back on it.

(My eosinophils were 1.01.  He told me that was from the hives, etc.

but I worry about that much inflammation in my blood.)

Comments are welcome about that issue.

 

If I do have allergic reaction on 200mg., he will have to change

me to Sprycel. It is the rope or the razor at this point.

 

Thanks for listening.

Simone

[Buzzm1]

Simone, I sympathize with your plight ... can't even imagine going through something like that ... you said you had been off Gleevec for a week and the hives were still coming and going. Seems the Gleevec would be out of your system.   Is there any chance that the hives could be caused from something other than Gleevec?  Are you seeing your allergist tomorrow?

 

Buzz

[simone4]

Buzz, yes I see my allergist tomorrow.  I've

been off Gleevec for two weeks.

Been taking Atarax during that time as well and that has helped the

iching but not so much the hives.

Thanks for your concern.

Simone