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I'm posting my first question

Started by kat73 , Jul 27 2015 06:02 PM

private messages computer problems

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3 replies to this topic

#1 kat73

Advanced Member

Members
884 posts

LocationWashington, DC area

Posted 27 July 2015 - 06:02 PM

I only just discovered that three lovely people private messaged me WEEKS ago and I didn't know it. I was looking for something else and came upon the two teeny weeny icons for that and lo and behold, there they were. I quickly and remorsefully wrote back, but one button said "post" and another "fast reply" and I think I did one way for one and another for the other. Or something. I really don't think they went, because they still show up in my "inbox" (my own replies, I mean. What are they doing THERE? Shouldn't there be an Outbox?) I also don't understand "notification ON/OFF" Notifying me? Notifying them? Yes, I did go to the instructions section and the settings section and I still don't understand. This actually is what kept me lurking in the shadows for 6 years instead of posting - I knew I'd run into trouble. Anyway, I am mortified that someone wrote to me and they think I didn't write back. Please somebody straighten me out. In the meantime, is it ethical if I do a shout-out here with their names and say, please check your private messages and if my answers are not there, let me know? They are:

janne - mlk210 - tazdad08

Dx July 2009 on routine physical. WBC 94. Started Gleevec 400 mg Sept 2009. MMR at 2yrs. Side effects (malaise, depression/anxiety, fatigue, nausea, periorbital edema) never improved. Kidney issues developed because of Gleevec. Switched to Sprycel 70 mg in Aug 2011. Above side effects disappeared or improved. Have been MR3.5 - 4.5 ever since. Two untreated pleural effusions followed by one treated by stopping Sprycel Jan 2017. After 9 weeks, PCR showed loss of MMR; re-started Sprycel at 50 mg and in 3 months was back to <0.01% IS. Pleural effusion returned within a couple of months, same as before (moderate, left side only). Stopped Sprycel 50 mg for 12 weeks; pleural effusion resolved. At about a monthoff the drug, PCR was 0.03; at 11 weeks it was 2.06 - lost CCyR? Have returned to 50 mg Sprycel for 3 weeks, intending to reduce to 20 mg going forward.

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#2 Antilogical

Advanced Member

Members
284 posts

LocationPittsburgh, PA

Posted 27 July 2015 - 06:14 PM

It is only unethical if you are emptying their bank accounts whilst shouting out their names....

Dx: Sudden severe anemia detected 07/2011, followed by WBC spike. CML Dx 02/2012.

Rx: 03/2012-Gleevec400. Reduced 02/2013 to Gleevec300 due to side effects (low blood counts).

Response: PCR-Und within 7 mo. on G400. Maintained MMR4-MMR4.5 on G300. PCR-Und since 02/2016.

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#3 Marnie

Advanced Member

Members
396 posts

Posted 27 July 2015 - 07:05 PM

Just an FYI that you don't have much room in your inbox (last time I looked you could only have 5 messages. . .has that changed?). . .so be sure to delete things from your inbox as you get them, or soon thereafter.

Marnie