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private messages computer problems

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#1 kat73


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Posted 27 July 2015 - 06:02 PM

I only just discovered that three lovely people private messaged me WEEKS ago and I didn't know it.  I was looking for something else and came upon the two teeny weeny icons for that and lo and behold, there they were.  I quickly and remorsefully wrote back, but one button said "post" and another "fast reply" and I think I did one way for one and another for the other.  Or something.  I really don't think they went, because they still show up in my "inbox" (my own replies, I mean.  What are they doing THERE?  Shouldn't there be an Outbox?)  I also don't understand "notification ON/OFF"  Notifying me?  Notifying them?  Yes, I did go to the instructions section and the settings section and I still don't understand.  This actually is what kept me lurking in the shadows for 6 years instead of posting - I knew I'd run into trouble.  Anyway, I am mortified that someone wrote to me and they think I didn't write back.  Please somebody straighten me out.  In the meantime, is it ethical if I do a shout-out here with their names and say, please check your private messages and if my answers are not there, let me know?  They are:


janne   -    mlk210  -   tazdad08 

Dx July 2009 on routine physical.  WBC 94.  Started Gleevec 400 mg Sept 2009.  MMR at 2yrs.  Side effects (malaise, depression/anxiety, fatigue, nausea, periorbital edema) never improved.  Kidney issues developed because of Gleevec.  Switched to Sprycel 70 mg in Aug 2011.  Above side effects disappeared or improved.  Have been MR3.5 - 4.5 ever since.  Two untreated pleural effusions followed by one treated by stopping Sprycel Jan 2017.  After 9 weeks, PCR showed loss of MMR; re-started Sprycel at 50 mg and in 3 months was back to <0.01% IS.  Pleural effusion returned within a couple of months, same as before (moderate, left side only).  Stopped Sprycel 50 mg for 12 weeks; pleural effusion resolved.  At about a monthoff the drug, PCR was 0.03; at 11 weeks it was 2.06 - lost CCyR? Have returned to 50 mg Sprycel for 3 weeks, intending to reduce to 20 mg going forward.

#2 Antilogical


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Posted 27 July 2015 - 06:14 PM

It is only unethical if you are emptying their bank accounts whilst shouting out their names....

Dx: Sudden severe anemia detected 07/2011, followed by WBC spike. CML Dx 02/2012.

Rx: 03/2012-Gleevec400.  Reduced 02/2013 to Gleevec300 due to side effects (low blood counts).

Response: PCR-Und within 7 mo. on G400. Maintained MMR4-MMR4.5 on G300. PCR-Und since 02/2016.

#3 Marnie


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Posted 27 July 2015 - 07:05 PM

Just an FYI that you don't have much room in your inbox (last time I looked you could only have 5 messages. . .has that changed?). . .so be sure to delete things from your inbox as you get them, or soon thereafter.



#4 gerry


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Posted 27 July 2015 - 07:59 PM

You can have up to 50 messages now and it also shows you how full your in box is.

Your message appears similar to how this forum looks, when you get a reply it just pops in underneath.

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