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According to this article ..... Who was raised in a house where your parent/relatives smoked?


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#21 Buzzm1

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Posted 27 July 2015 - 07:15 PM

Buzzm - Some of my favorite workdays were spent at the Clairton and ET plants.  Now I'm mostly working downtown - er - DAHNTAHN.  I miss the free parking....

 

BTW - I'm skeptical about any link between CML and smoking....

 

Went dahntahn to see the Stillers play Worshington and wound up meetin' yunze gize who hadn't et yet so we had sammiches and Iren City near the pahrk.

 

Rilly? Get aht!  Were they Primanni sammiches with fries n coleslaw n 'at?

 

Hey!  I was dahntahn today. I stopped at Primanni's for a sammich with slaw

 

see, that's what I mean about the great things in southwestern PA; the Steelers, Iron City, Primannis, and the dialect ...

BTW, I never had a PA accent, or the dialect, but am always able to readily identify others from the great state of PA ... 

I miss the local food there, and it's dinner time here ... wishfully thinking


For the benefit of yourself and others please add your CML history into your Signature

 

02/2010 Gleevec 400mg

2011 Two weakly positives, PCRU, weakly positive

2012 PCRU, PCRU, PCRU, PCRU

2013 PCRU, PCRU, PCRU, weakly positive

2014 PCRU, PCRU, PCRU, PCRU (12/07 began dose reduction w/each continuing PCRU)

2015 300, 250, 200, 150

2016 100, 50/100, 100, 10/17 TFR

2017 01/17 TFR, 04/18 TFR, 07/18 TFR 0.0012, 08/29 TFR 0.001, 10/17 TFR 0.000

2018 01/16 TFR 0.0004 ... next quarterly PCR 04/17

 

At the earliest opportunity, and whenever possible, lower your TKI dosage; TKIs are toxic drugs and the less we take longterm the better off we are going to be ... this is especially true for older adults.  

 

In hindsight I should have started my dosage reduction two years earlier; it might have helped minimize some of the longterm cumulative toxic effects of TKIs that I am beset with.  

 

longterm side-effects Peripheral Artery Disease - legs (it's a bitch); continuing shoulder problems, right elbow inflammation.   GFR and creatinine vastly improved after stopping Gleevec.

 

Cumulative Gleevec dosage estimated at 830 grams

 

Taking Gleevec 400mg an hour after my largest meal of the day helped eliminate the nausea that Gleevec is notorious for.  

 

Trey's CML BlogStopping - The OddsStop Studies - Discussion Forum Cessation Study

Big PhRMA - Medicare Status - Social Security Status - Deficit/Debt


#22 Antilogical

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Posted 27 July 2015 - 07:28 PM

Sounded pretty authentic to me!  Musta been in the 'Burg.


Dx: Sudden severe anemia detected 07/2011, followed by WBC spike. CML Dx 02/2012.

Rx: 03/2012-Gleevec400.  Reduced 02/2013 to Gleevec300 due to side effects (low blood counts).

Response: PCR-Und within 7 mo. on G400. Maintained MMR4-MMR4.5 on G300. PCR-Und since 02/2016.


#23 Antilogical

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Posted 27 July 2015 - 07:32 PM

I never said "Yinz" as a kid, but definitely had the dialect.

 

Buzz - Do you remember eating scrapple or apple butter?


Dx: Sudden severe anemia detected 07/2011, followed by WBC spike. CML Dx 02/2012.

Rx: 03/2012-Gleevec400.  Reduced 02/2013 to Gleevec300 due to side effects (low blood counts).

Response: PCR-Und within 7 mo. on G400. Maintained MMR4-MMR4.5 on G300. PCR-Und since 02/2016.


#24 Buzzm1

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Posted 27 July 2015 - 07:46 PM

I never said "Yinz" as a kid, but definitely had the dialect.

 

Buzz - Do you remember eating scrapple or apple butter?

most definitely Antiological ... and stuffed cabbage, stuffed bell peppers, stuffed pork chops .. so much really good stuff

my mother was a great cook, and baker ... those were really the good old days

we didn't have a lot growing up, but we always had enough food on the table


For the benefit of yourself and others please add your CML history into your Signature

 

02/2010 Gleevec 400mg

2011 Two weakly positives, PCRU, weakly positive

2012 PCRU, PCRU, PCRU, PCRU

2013 PCRU, PCRU, PCRU, weakly positive

2014 PCRU, PCRU, PCRU, PCRU (12/07 began dose reduction w/each continuing PCRU)

2015 300, 250, 200, 150

2016 100, 50/100, 100, 10/17 TFR

2017 01/17 TFR, 04/18 TFR, 07/18 TFR 0.0012, 08/29 TFR 0.001, 10/17 TFR 0.000

2018 01/16 TFR 0.0004 ... next quarterly PCR 04/17

 

At the earliest opportunity, and whenever possible, lower your TKI dosage; TKIs are toxic drugs and the less we take longterm the better off we are going to be ... this is especially true for older adults.  

 

In hindsight I should have started my dosage reduction two years earlier; it might have helped minimize some of the longterm cumulative toxic effects of TKIs that I am beset with.  

 

longterm side-effects Peripheral Artery Disease - legs (it's a bitch); continuing shoulder problems, right elbow inflammation.   GFR and creatinine vastly improved after stopping Gleevec.

 

Cumulative Gleevec dosage estimated at 830 grams

 

Taking Gleevec 400mg an hour after my largest meal of the day helped eliminate the nausea that Gleevec is notorious for.  

 

Trey's CML BlogStopping - The OddsStop Studies - Discussion Forum Cessation Study

Big PhRMA - Medicare Status - Social Security Status - Deficit/Debt


#25 Trey

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Posted 27 July 2015 - 09:06 PM

Drove dahn McNightmare Road to get to Forbes Field. 

 

I've been everywhere, man.

 

https://www.youtube.com/watch?v=ov4epAJRPMw

 

For my Aussie friends:

 

https://www.youtube.com/watch?v=-UAh7ogwAYQ


Edited by Trey, 27 July 2015 - 09:10 PM.


#26 Antilogical

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Posted 27 July 2015 - 09:29 PM

My grandfather took me to Forbes Field, once.  I sat behind a pillar and could not see the field.  For years after that, I couldn't understand why people liked baseball.


Dx: Sudden severe anemia detected 07/2011, followed by WBC spike. CML Dx 02/2012.

Rx: 03/2012-Gleevec400.  Reduced 02/2013 to Gleevec300 due to side effects (low blood counts).

Response: PCR-Und within 7 mo. on G400. Maintained MMR4-MMR4.5 on G300. PCR-Und since 02/2016.


#27 Buzzm1

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Posted 27 July 2015 - 09:46 PM

we'd grab some beer and take in a night game in the cheap seats at Forbes Field

PA had really loose enforcement when it came to drinking at that time

at 16 we were frequenting bars


For the benefit of yourself and others please add your CML history into your Signature

 

02/2010 Gleevec 400mg

2011 Two weakly positives, PCRU, weakly positive

2012 PCRU, PCRU, PCRU, PCRU

2013 PCRU, PCRU, PCRU, weakly positive

2014 PCRU, PCRU, PCRU, PCRU (12/07 began dose reduction w/each continuing PCRU)

2015 300, 250, 200, 150

2016 100, 50/100, 100, 10/17 TFR

2017 01/17 TFR, 04/18 TFR, 07/18 TFR 0.0012, 08/29 TFR 0.001, 10/17 TFR 0.000

2018 01/16 TFR 0.0004 ... next quarterly PCR 04/17

 

At the earliest opportunity, and whenever possible, lower your TKI dosage; TKIs are toxic drugs and the less we take longterm the better off we are going to be ... this is especially true for older adults.  

 

In hindsight I should have started my dosage reduction two years earlier; it might have helped minimize some of the longterm cumulative toxic effects of TKIs that I am beset with.  

 

longterm side-effects Peripheral Artery Disease - legs (it's a bitch); continuing shoulder problems, right elbow inflammation.   GFR and creatinine vastly improved after stopping Gleevec.

 

Cumulative Gleevec dosage estimated at 830 grams

 

Taking Gleevec 400mg an hour after my largest meal of the day helped eliminate the nausea that Gleevec is notorious for.  

 

Trey's CML BlogStopping - The OddsStop Studies - Discussion Forum Cessation Study

Big PhRMA - Medicare Status - Social Security Status - Deficit/Debt


#28 gerry

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Posted 28 July 2015 - 04:21 AM

Thanks Trey - it's a well known song here. 

"I've Been Everywhere" is a song which was written by Australian country singer Geoff Mack in 1959, and made popular by Lucky Starr in 1962.- From Wikipedia



#29 snowbear

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Posted 28 July 2015 - 11:05 AM

I'm from Pittsburgh, too.  Actually 30 miles northwest of downtown near a nuclear power plant.  I've heard rumors that there is a higher than average incidence of all leukemias in this area, but I don't know that has been proven.   

 

The steel industry collapsed when I was just a kid, but I still remember the smoggy skies.  It is so much cleaner and brighter here now.  



#30 pammartin

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Posted 28 July 2015 - 11:21 AM

The town is quite attractive these days.  One of my son's favorite adventures still includes riding the incline and then going to Station Square to see the dancing water fountains.  He will sit for hours just to watch the trains go by. 

 

I have a few friends from the 'burgh.  If I don't see them for a while I had to really listen for the first half hour or I had no idea what they were saying.  A local radio station used to have a morning segment dedicated to the dialect of the 'burgh. 

 

With the zoo, Kennywood, Aviary, Carnegie Museum just to name a few are great reasons to visit the area.  I did not have an opportunity to take a photo because traffic was nuts along with the construction adding to a cluster only Pittsburgh can produce, but one street had a beautiful painting of a woman in a wedding dress walking into a house. It took me a minute or two to realize it was painted on a building that was sideways to the row houses and at a glance looked very real.  I am going to have to see if there is any information on the artwork.  In all the traffic it was a great surprise and made me smile. 



#31 snowbear

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Posted 28 July 2015 - 11:43 AM

Taking the incline to Mt. Washington is still one of my favorite Pittsburgh adventures.  Never get tired of that view !  The murals are very interesting.  I've noticed them mainly on Penn Avenue near the Strip District and Children's Hospital.  There are also a lot of sculptures downtown including a very large one of Mr. Rodgers overlooking the river on the North Shore.  In the courtyard where the ice skating rink is in the winter, there's a crazy dinosaur sculpture that looks like a ketchup bottle.  Lots of neat things to do and see around here!



#32 pammartin

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Posted 28 July 2015 - 12:01 PM

That is where I was near, Penn Ave and Children's hospital.  Am hoping there is information on them.  When I go back down I am going to try to plan it where rush hour is not in motion. I would like a photo of the one I saw and more if I find them.

 

Thanks! 

 

Love the ketchup dino, we used to attend light up night every year.  We would park at Station Square, have dinner then ride the T across the river.  One year it was about 10 degrees and the T broke down.  We walked from the ice rink across the bridge and to Station Square, I think the crowd all huddled together to try to stay warmer and keep the wind off us.  We went one more year and it was almost 40 degrees, the MC mentioned the brutal temps the year before then noted he only had a light jacket on.  With work schedules we then we started going to the local one in Franklin, smaller but still very nice.  The fireworks on the 4th choreographed to music were great, but getting in and out of the city was a bear during July 4th celebration.



#33 Dona_B

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Posted 28 July 2015 - 12:39 PM

Is there still a mall up there built next to a gray pile of something? Weirdest thing but beautiful area.


DX 1/14; Sprycel 100 Mg, liver toxicity; Sprycel 80 Mg; down to 50 Mg for 5 months. Numbers going up. Back to 80 Mg 10/16 (with 50s slipped in to use up) BCR/ABL: .0047 12/15; .0302 4/16;  .0528 8/16;  .084 10/16; .045, 1/17 back up on 80 mg Sprycel; .006, 3/17; .016, 7/17; Shingles 8/17


#34 Buzzm1

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Posted 28 July 2015 - 12:56 PM

Is there still a mall up there built next to a gray pile of something? Weirdest thing but beautiful area.

that gray stuff is slag .. impurities from the iron ore in the steel making process ...

used to be quite the show, watching the red/white hot slag being dumped down the hill, from the bucket cars on the train tracks above

according to my sister there, that mall is well on its way to becoming defunct .. there is rumor of its impending sale


For the benefit of yourself and others please add your CML history into your Signature

 

02/2010 Gleevec 400mg

2011 Two weakly positives, PCRU, weakly positive

2012 PCRU, PCRU, PCRU, PCRU

2013 PCRU, PCRU, PCRU, weakly positive

2014 PCRU, PCRU, PCRU, PCRU (12/07 began dose reduction w/each continuing PCRU)

2015 300, 250, 200, 150

2016 100, 50/100, 100, 10/17 TFR

2017 01/17 TFR, 04/18 TFR, 07/18 TFR 0.0012, 08/29 TFR 0.001, 10/17 TFR 0.000

2018 01/16 TFR 0.0004 ... next quarterly PCR 04/17

 

At the earliest opportunity, and whenever possible, lower your TKI dosage; TKIs are toxic drugs and the less we take longterm the better off we are going to be ... this is especially true for older adults.  

 

In hindsight I should have started my dosage reduction two years earlier; it might have helped minimize some of the longterm cumulative toxic effects of TKIs that I am beset with.  

 

longterm side-effects Peripheral Artery Disease - legs (it's a bitch); continuing shoulder problems, right elbow inflammation.   GFR and creatinine vastly improved after stopping Gleevec.

 

Cumulative Gleevec dosage estimated at 830 grams

 

Taking Gleevec 400mg an hour after my largest meal of the day helped eliminate the nausea that Gleevec is notorious for.  

 

Trey's CML BlogStopping - The OddsStop Studies - Discussion Forum Cessation Study

Big PhRMA - Medicare Status - Social Security Status - Deficit/Debt


#35 DebDoodah22

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Posted 28 July 2015 - 06:58 PM

Texans don't have accents. Y'all do :)

#36 pammartin

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Posted 29 July 2015 - 03:32 PM

I ran across this today and thought of our conversation....

 

http://www.aroundme....tsburgh#slide/0



#37 pammartin

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Posted 29 July 2015 - 10:39 PM

Attached File  Bride mural in Pittsburgh.jpg   303.5KB   0 downloads

 

Found my mural snowbear.  Here is a link to others.

 

https://images.searc...burgh&fr=mcafee

 






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