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Posted 20 July 2015 - 09:27 AM
How much water do you all drink? My doctor recommended I drink about 100 oz/day (I'm guessing to help flush all the cancer cells out). I can get through 60-65 oz with no problem, but those last 40 are really a struggle. It's kind of making me hate water! Any suggestions? And am I going to have to do this forever, or just until I reach MMR?
Thanks! - Karen
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Posted 20 July 2015 - 10:08 AM
10/01/2014 100% Diagnosis (WBC 278k, Blasts 6%, Spleen extended 20cm)
Cancer Sucks!
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Posted 20 July 2015 - 10:30 AM
I have a real problem getting enough water in but find it helps to put filtered water in a stainless steel bottle like a Kleen Kanteen. For some reason, it tastes better in there. A lot of people put fresh fruit or cucumbers in their water and I have seen special containers for that purpose. There are probably even combinations on Pinterest.
Your post also reminded me. When I was first diagnosed, a friend tried to get me on fruit vitamins she was selling. She directed me to a website, beatcancer.org (think org is the right suffix). Anyhow, a phone consultation was set up where one would call on their dime, and a trained counselor would go over things that could be changed. I didn't continue because some of the suggestions were a little hard to do in the midwest...like eat all organic vegetables. I have a garden but totally organic doesn't work here. Same with organic pest control. Other things included drinking water, eating vegetarian, being creative, exercising, etc...
Edited
DX 1/14; Sprycel 100 Mg, liver toxicity; Sprycel 80 Mg; down to 50 Mg for 5 months. Numbers going up. Back to 80 Mg 10/16 (with 50s slipped in to use up) BCR/ABL: .0047 12/15; .0302 4/16; .0528 8/16; .084 10/16; .045, 1/17 back up on 80 mg Sprycel; .006, 3/17; .016, 7/17; Shingles 8/17
Advanced Member
Posted 20 July 2015 - 01:32 PM
I place about 6 frozen blueberries in a 2 liter coke bottle at night, place in fridge, and drink from it all the next day. It gives a little bit of flavor, the blueberries offer nutrition, and I can monitor how much I'm getting. I don't buy flavored water because I don't know what else they put in there. I've heard that the amount of water you drink in oz. should be half of your body weight in lbs. If you weight 200 lbs, drink 100 oz of water. I personally shoot for 60-70 oz. and don't fret over it because I figure that is better than getting frustrated at falling short and stop trying.
Disclaimer (for my own peace of mind): I don't drink out of the 2 liter bottle, I pour the water into a glass. Haha
Dx: 01 March 2011
Sprycel 100 mg per day since dx
MMR: July 2013
numerous side effects
Thankful for the gift of each new day, and try to live it to the fullest 
Advanced Member
Posted 20 July 2015 - 04:40 PM
That's a great idea! I may try that. I have a big bag of frozen strawberries in the freezer.
Marnie
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Posted 20 July 2015 - 04:52 PM
I drink anywhere from 12-120 ounces of water daily. For flavor, I get mine made with barley and hops. 
January 15: .53%
April 15: .78%
July 15: 1.1% - upped dosage to 400mg after this test
Oct 15: .85%
December 15: .28%
March 16: .29%
July 16: .34%
October 16: .11%
January 17: .081%
April 17: .055%
July 17: .135%
Oct 17: .008%
Advanced Member
Posted 20 July 2015 - 05:25 PM
Pat
"You can't change the direction of the wind but you can adjust your sails."
DX 12/08; Gleevec 400mg; liver toxicity; Sprycel 100mg.; CCyR 4/10; MMR 8/10; Pleural Effusion 2/12; Sprycel 50mg. Maintaining MMR; 2/15 PCRU; 8/16 drifting in and out of undetected like a wave meeting the shore. Retired 12/23/2016! 18 months of PCRU, most recent at Mayo on 7/25/17 was negative at their new sensitivity reporting of 0.003.<p>
Advanced Member
Posted 20 July 2015 - 08:28 PM
During the first few weeks after diagnosis while starting TKI drugs it is important to over-hydrate to flush out the billions of dead cells. After a month or so it is counterproductive and flushes out too many nutrients from the blood.
Advanced Member
Posted 20 July 2015 - 11:12 PM
During the first few weeks after diagnosis while starting TKI drugs it is important to over-hydrate to flush out the billions of dead cells.
I wish I had been told about that at that time 
Dx: 01 March 2011
Sprycel 100 mg per day since dx
MMR: July 2013
numerous side effects
Thankful for the gift of each new day, and try to live it to the fullest
Advanced Member
Posted 21 July 2015 - 03:06 PM
I place about 6 frozen blueberries in a 2 liter coke bottle at night, place in fridge, and drink from it all the next day. It gives a little bit of flavor, the blueberries offer nutrition, and I can monitor how much I'm getting. I don't buy flavored water because I don't know what else they put in there
That's a terrific idea. I feel the same way about flavored water. I will definitely try this.
Sue
Dx April 2013, FISH 62, BMB not enough for PCR test; put on Gleevec 400;
August 2013, FISH 8.7;
Oct 2013, FISH 5.6
Stopped Gleevec Nov 2013 for 6 weeks due to terrible side effects; Jan 2014 started Sprycel 50mg;
Feb, 2014 PCR 6.8
May,2014 PCR .149
Aug, 2014 PCR .015
Nov. 2014 PCRU
March, 2016 went down to 40mg Sprycel
Oct. 2016 stopped Sprycel for a couple weeks due to concern about shortness of breath. Echo showed mild PAH.
Nov 1 2016 resumed Sprycel 20 mg daily
Dec 2016 PCRU
March 2017 PCR 0.020
May 2017 PCRU
Sept 2017 PCRU
Dec 2017 PCRU
Advanced Member
Posted 22 July 2015 - 09:53 PM
I drink anywhere from 12-120 ounces of water daily. For flavor, I get mine made with barley and hops.
You're one of my favorite poster JPD.
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