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New results - not great - upping dosage


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#21 mdszj

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Posted 11 July 2015 - 10:32 AM

Jeezus that figures...


dx cml 7/2012; 100 mg sprycel; splenectomy 9/2012; reached prcu 10/2013; dx smoldering myeloma 1/2015; 80 mg sprycel 12/2015; 50 mg sprycel 7/13/16; discontinued sprycel 11/15/16


#22 JPD

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Posted 11 July 2015 - 10:59 AM

Apple skin is where Quercetin is concentrated. The skin is the best part!

that's where all the pesticides reside too ... Booooooo

January 15: .53%

April 15:       .78%

July 15:      1.1% - upped dosage to 400mg after this test

Oct 15:       .85%

December 15:  .28%

March 16: .29%

July 16: .34%

October 16: .11%

January 17: .081%

April 17: .055%

July 17: .135%

Oct 17: .008%


#23 mdszj

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Posted 11 July 2015 - 03:19 PM

that's where all the pesticides reside too ... Booooooo

 

This year's dirty dozen winners:

 

http://www.ewg.org/f..._dozen_list.php


dx cml 7/2012; 100 mg sprycel; splenectomy 9/2012; reached prcu 10/2013; dx smoldering myeloma 1/2015; 80 mg sprycel 12/2015; 50 mg sprycel 7/13/16; discontinued sprycel 11/15/16


#24 JPD

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Posted 11 July 2015 - 05:36 PM

what about capers. they look like boogers in a jar


what about capers. they look like boogers in a jar

Yes, but on some smoked salmon - divine !!!

January 15: .53%

April 15:       .78%

July 15:      1.1% - upped dosage to 400mg after this test

Oct 15:       .85%

December 15:  .28%

March 16: .29%

July 16: .34%

October 16: .11%

January 17: .081%

April 17: .055%

July 17: .135%

Oct 17: .008%


#25 Cool Hand Leuk

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Posted 25 December 2015 - 12:16 PM

My personal results with quercetin seem to point to the conclusion that it interferes with my TKI so I have stopped taking it after a series of poor results. I am hoping for my results to improve since I stopped taking it a few months ago. It also seems to bring on pain in my spleen. If anyone is taking this as a result of advise from this forum, please re-examine your results to see if this supplement may be affecting you adversely.

#26 JPD

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Posted 03 January 2016 - 12:20 PM

January 15: .53%

April 15:       .78%

July 15:      1.1% - upped dosage to 400mg after this test

Oct 15:       .85%

December 15:  .28%

 

So, while still turtle, it seems the dosage uppage is working.  The docs seemed happy enough...


January 15: .53%

April 15:       .78%

July 15:      1.1% - upped dosage to 400mg after this test

Oct 15:       .85%

December 15:  .28%

March 16: .29%

July 16: .34%

October 16: .11%

January 17: .081%

April 17: .055%

July 17: .135%

Oct 17: .008%


#27 Cool Hand Leuk

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Posted 03 January 2016 - 12:43 PM

Good on ya Mate

#28 Terran

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Posted 03 January 2016 - 01:01 PM

January 15: .53%
April 15: .78%
July 15: 1.1% - upped dosage to 400mg after this test
Oct 15: .85%
December 15: .28%

So, while still turtle, it seems the dosage uppage is working. The docs seemed happy enough...


Oh good.

#29 rcase13

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Posted 03 January 2016 - 01:55 PM

That is good to hear. I am sure you are relieved. Hope this continue all the way to .000

10/01/2014 100% Diagnosis (WBC 278k, Blasts 6%, Spleen extended 20cm)

01/02/2015 0.06% Tasigna 600mg
04/08/2015 0.01% Tasigna 600mg
07/01/2015 0.01% Tasigna 600mg
10/05/2015 0.02% Tasigna 600mg
01/04/2016 0.01% Tasigna 600mg
04/04/2016 PCRU Tasigna 600mg
07/18/2016 PCRU Tasigna 600mg
10/12/2016 PCRU Tasigna 600mg
01/09/2017 PCRU Tasigna 600mg
04/12/2017 PCRU Tasigna 600mg
10/16/2017 PCRU Tasigna 600mg
01/15/2018 PCRU Tasigna 600mg

 

Cancer Sucks!


#30 Buzzm1

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Posted 03 January 2016 - 02:38 PM

That's a good start for 2016 JPD ... have a better one ... 


For the benefit of yourself and others please add your CML history into your Signature

 

02/2010 Gleevec 400mg

2011 Two weakly positives, PCRU, weakly positive

2012 PCRU, PCRU, PCRU, PCRU

2013 PCRU, PCRU, PCRU, weakly positive

2014 PCRU, PCRU, PCRU, PCRU (12/07 began dose reduction w/each continuing PCRU)

2015 300, 250, 200, 150

2016 100, 50/100, 100, 10/17 TFR

2017 01/17 TFR, 04/18 TFR, 07/18 TFR 0.0012, 08/29 TFR 0.001, 10/17 TFR 0.000

2018 01/16 TFR 0.0004 ... next quarterly PCR 04/17

 

At the earliest opportunity, and whenever possible, lower your TKI dosage; TKIs are toxic drugs and the less we take longterm the better off we are going to be ... this is especially true for older adults.  

 

In hindsight I should have started my dosage reduction two years earlier; it might have helped minimize some of the longterm cumulative toxic effects of TKIs that I am beset with.  

 

longterm side-effects Peripheral Artery Disease - legs (it's a bitch); continuing shoulder problems, right elbow inflammation.   GFR and creatinine vastly improved after stopping Gleevec.

 

Cumulative Gleevec dosage estimated at 830 grams

 

Taking Gleevec 400mg an hour after my largest meal of the day helped eliminate the nausea that Gleevec is notorious for.  

 

Trey's CML BlogStopping - The OddsStop Studies - Discussion Forum Cessation Study

Big PhRMA - Medicare Status - Social Security Status - Deficit/Debt


#31 soundoff

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Posted 03 January 2016 - 08:42 PM

Great news JPD!




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