Can't Stop Coughing
Posted 23 June 2015 - 09:36 AM
I have this bad cough though. Not sure what it's from? Have any ideas? When I first got diagnosed with CML last November I had a really bad cough even before I was hospitalized and throughout my first stay. Not sure if it was because of how dry it was in the hospital.
And for those on a Neutropenic diet.. I miss fresh vegetables and fruits so much! I found fruit juices that are pasteurized at Better Health. They are by a company called Lakewood. So at least I feel like I drinkin (eating) something fresh!
Posted 23 June 2015 - 12:45 PM
I posted before, but I pulled it. I read your BMT as a BMA. Heal fast! Sending good vibes your way for a full and easy recovery!
Posted 23 June 2015 - 01:12 PM
So glad you are doing so good! Keep up posted and let those on the transplant discussion board know your progress, too - you can never have too much positive feedback!
"You can't change the direction of the wind but you can adjust your sails."
DX 12/08; Gleevec 400mg; liver toxicity; Sprycel 100mg.; CCyR 4/10; MMR 8/10; Pleural Effusion 2/12; Sprycel 50mg. Maintaining MMR; 2/15 PCRU; 8/16 drifting in and out of undetected like a wave meeting the shore. Retired 12/23/2016! 18 months of PCRU, most recent at Mayo on 7/25/17 was negative at their new sensitivity reporting of 0.003.<p>
Posted 23 June 2015 - 04:30 PM
Could be graft vs host (GVHD) issues causing excess mucous or lung irritation. But you still need to be alert for any signs of infection at this stage.
Posted 29 June 2015 - 04:56 PM
Brandon - Oh, I'm so glad to hear from you! I was wondering and wondering how you were doing. I've been on vacation for a week or so, and I'm just catching up here and saw this. I do so hope and pray to ALL the gods that this time the BMT will get every last one of those blankety-blank CML suckers!!!!
Dx July 2009 on routine physical. WBC 94. Started Gleevec 400 mg Sept 2009. MMR at 2yrs. Side effects (malaise, depression/anxiety, fatigue, nausea, periorbital edema) never improved. Kidney issues developed because of Gleevec. Switched to Sprycel 70 mg in Aug 2011. Above side effects disappeared or improved. Have been MR3.5 - 4.5 ever since. Two untreated pleural effusions followed by one treated by stopping Sprycel Jan 2017. After 9 weeks, PCR showed loss of MMR; re-started Sprycel at 50 mg and in 3 months was back to <0.01% IS. Pleural effusion returned within a couple of months, same as before (moderate, left side only). Stopped Sprycel 50 mg for 12 weeks; pleural effusion resolved. At about a monthoff the drug, PCR was 0.03; at 11 weeks it was 2.06 - lost CCyR? Have returned to 50 mg Sprycel for 3 weeks, intending to reduce to 20 mg going forward.
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