Can't Stop Coughing
#1
Posted 23 June 2015 - 09:36 AM
I have this bad cough though. Not sure what it's from? Have any ideas? When I first got diagnosed with CML last November I had a really bad cough even before I was hospitalized and throughout my first stay. Not sure if it was because of how dry it was in the hospital.
And for those on a Neutropenic diet.. I miss fresh vegetables and fruits so much! I found fruit juices that are pasteurized at Better Health. They are by a company called Lakewood. So at least I feel like I drinkin (eating) something fresh!
#2
Posted 23 June 2015 - 12:45 PM
I posted before, but I pulled it. I read your BMT as a BMA. Heal fast! Sending good vibes your way for a full and easy recovery!
Tedsey
#3
Posted 23 June 2015 - 01:12 PM
Brandon,
So glad you are doing so good! Keep up posted and let those on the transplant discussion board know your progress, too - you can never have too much positive feedback!
Good luck!
Pat
"You can't change the direction of the wind but you can adjust your sails."
DX 12/08; Gleevec 400mg; liver toxicity; Sprycel 100mg.; CCyR 4/10; MMR 8/10; Pleural Effusion 2/12; Sprycel 50mg. Maintaining MMR; 2/15 PCRU; 8/16 drifting in and out of undetected like a wave meeting the shore. Retired 12/23/2016! 18 months of PCRU, most recent at Mayo on 7/25/17 was negative at their new sensitivity reporting of 0.003.<p>
#4
Posted 23 June 2015 - 04:30 PM
Could be graft vs host (GVHD) issues causing excess mucous or lung irritation. But you still need to be alert for any signs of infection at this stage.
#5
Posted 29 June 2015 - 04:56 PM
Brandon - Oh, I'm so glad to hear from you! I was wondering and wondering how you were doing. I've been on vacation for a week or so, and I'm just catching up here and saw this. I do so hope and pray to ALL the gods that this time the BMT will get every last one of those blankety-blank CML suckers!!!!
Dx July 2009 on routine physical. WBC 94. Started Gleevec 400 mg Sept 2009. MMR at 2yrs. Side effects (malaise, depression/anxiety, fatigue, nausea, periorbital edema) never improved. Kidney issues developed because of Gleevec. Switched to Sprycel 70 mg in Aug 2011. Above side effects disappeared or improved. Have been MR3.5 - 4.5 ever since. Two untreated pleural effusions followed by one treated by stopping Sprycel Jan 2017. After 9 weeks, PCR showed loss of MMR; re-started Sprycel at 50 mg and in 3 months was back to <0.01% IS. Pleural effusion returned within a couple of months, same as before (moderate, left side only). Stopped Sprycel 50 mg for 12 weeks; pleural effusion resolved. At about a monthoff the drug, PCR was 0.03; at 11 weeks it was 2.06 - lost CCyR? Have returned to 50 mg Sprycel for 3 weeks, intending to reduce to 20 mg going forward.
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