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Can't Stop Coughing

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#1 Brandon G

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Posted 23 June 2015 - 09:36 AM

After 41 days in the hospital, I am finally home! Feeling good for the most part, just weak because of my low blood counts. Surprised they discharged me so soon after my (second) BMT, which was last Thursday.

I have this bad cough though. Not sure what it's from? Have any ideas? When I first got diagnosed with CML last November I had a really bad cough even before I was hospitalized and throughout my first stay. Not sure if it was because of how dry it was in the hospital.

And for those on a Neutropenic diet.. I miss fresh vegetables and fruits so much! I found fruit juices that are pasteurized at Better Health. They are by a company called Lakewood. So at least I feel like I drinkin (eating) something fresh!

#2 Tedsey


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Posted 23 June 2015 - 12:45 PM

I posted before, but I pulled it.  I read your BMT as a BMA.  Heal fast!  Sending good vibes your way for a full and easy recovery!




#3 hannibellemo


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Posted 23 June 2015 - 01:12 PM



So glad you are doing so good! Keep up posted and let those on the transplant discussion board know your progress, too - you can never have too much positive feedback!


Good luck!



"You can't change the direction of the wind but you can adjust your sails."

DX 12/08; Gleevec 400mg; liver toxicity; Sprycel 100mg.; CCyR 4/10; MMR 8/10; Pleural Effusion 2/12; Sprycel 50mg. Maintaining MMR; 2/15 PCRU; 8/16 drifting in and out of undetected like a wave meeting the shore. Retired 12/23/2016! 18 months of PCRU, most recent at Mayo on 7/25/17 was negative at their new sensitivity reporting of 0.003.<p>

#4 Trey


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Posted 23 June 2015 - 04:30 PM

Could be graft vs host (GVHD) issues causing excess mucous or lung irritation.  But you still need to be alert for any signs of infection at this stage.

#5 kat73


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Posted 29 June 2015 - 04:56 PM

Brandon - Oh, I'm so glad to hear from you!  I was wondering and wondering how you were doing.  I've been on vacation for a week or so, and I'm just catching up here and saw this.  I do so hope and pray to ALL the gods that this time the BMT will get every last one of those blankety-blank CML suckers!!!!

Dx July 2009 on routine physical.  WBC 94.  Started Gleevec 400 mg Sept 2009.  MMR at 2yrs.  Side effects (malaise, depression/anxiety, fatigue, nausea, periorbital edema) never improved.  Kidney issues developed because of Gleevec.  Switched to Sprycel 70 mg in Aug 2011.  Above side effects disappeared or improved.  Have been MR3.5 - 4.5 ever since.  Two untreated pleural effusions followed by one treated by stopping Sprycel Jan 2017.  After 9 weeks, PCR showed loss of MMR; re-started Sprycel at 50 mg and in 3 months was back to <0.01% IS.  Pleural effusion returned within a couple of months, same as before (moderate, left side only).  Stopped Sprycel 50 mg for 12 weeks; pleural effusion resolved.  At about a monthoff the drug, PCR was 0.03; at 11 weeks it was 2.06 - lost CCyR? Have returned to 50 mg Sprycel for 3 weeks, intending to reduce to 20 mg going forward.

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