6 replies to this topic

[DebDoodah22]

Anybody here supplementing these? We've talked a lot about vitamin D, magnesium, Potasium and even Curcumin, but how about B-12 and Folate?

My blood work came back with low numbers, but dr. is unconcerned...yet literature says,deficiency can lead to fatigue, depression, Vision disturbances, mental acuity and irritability.... This seems like where I am and would prefer not to be - considering adding these supplement to my routine. Anybody else doing this?

[cookey65]

Hi, This is my first post, I don't have cml but was dx in 2010 with polycythemia vera. I stayed with my original Dr. until last year, I kept telling him how tired I was all the time and could hardly get up to go to work but he was not concerned. Long story shorten, saw another Dr. and found out my fatigue was from very low B-12 counts. Had a seris of shots, one a day for seven days, then once a week for a month, am now on fast dissole B-12 and feel 100% better. Just something you might have your PCP check.

 

Hope this helps!

 

[Billie Murawski]

Hi Cookey welcome to our discussion board.

My husband has polycythemia familia  he has been complaining of fatigue I never thought of his b12 being low. I'll mention it to his doc and find out what his levels are.  Thank you    Billie

[Billie Murawski]

Hi Deb,

 I take b12  and magnesium b12 has helped my hair grow back and magnesium really helps with muscle cramps I believe my other meds keep me tired but I bet b12 would help you. otherwise all my doctors tell me to just take a multi-vitamin, they have told me that large doses of any herbal ingredient or supplement can be very dangerous even fatal. I was told not to take ANYTHING until my pcp and my onc approve it!!!.   Hope you feel better soon    Billie

[DebDoodah22]

This is what my onc has said as well....my pcp is more willing to supplement with the right I research behind it...just looking for ways to boost flagging stamina and acuity,so I can stay employed as long as possible. Thanks Billie

[cookey65]

Thank you for the warm welcome, unfortunately fatigue comes with PV mine was so bad that I had to retire early. At the time I had no idea that my B-12 levels were so low, had I known maybe I could have lasted longer in the work force. Oh well, at least I learned and maybe can help others avoid my mistake. Do want to let you know that the fast disolve B-12 works better than just a pill form for me at least, my system doesn't accept the B-12 in the pill form.

[tazdad08]

I am going in two weeks for blood work to test my b-12. I am hoping its low. Maybe a bad thing to hope for, but I know my pcp wont do injections without the research and bloodwork to support me needing them. He has increased my testosterone shots and my thyroid meds to help combat fatigue. He only does this with supporting blood work. I am greatful to have a great pcp that is willing to help where my onc drops off.