winespritzer - I had the whole body skin peel thing, too! Weird. Went on and on, in cycles of about 8-12 weeks for about a year. But then it stopped and I haven't had that particular side effect anymore. I did forget to add to my earlier post that, sadly, the tinnitus and hearing loss did not ease up after 3 weeks off the Sprycel. If anything, they are worse, and in a week or so I'll find out by how much.
Recurring Sore Throat
Posted 22 July 2015 - 12:03 PM
Dx July 2009 on routine physical. WBC 94. Started Gleevec 400 mg Sept 2009. MMR at 2yrs. Side effects (malaise, depression/anxiety, fatigue, nausea, periorbital edema) never improved. Kidney issues developed because of Gleevec. Switched to Sprycel 70 mg in Aug 2011. Above side effects disappeared or improved. Have been MR3.5 - 4.5 ever since. Two untreated pleural effusions followed by one treated by stopping Sprycel Jan 2017. After 9 weeks, PCR showed loss of MMR; re-started Sprycel at 50 mg and in 3 months was back to <0.01% IS. Pleural effusion returned within a couple of months, same as before (moderate, left side only). Stopped Sprycel 50 mg for 12 weeks; pleural effusion resolved. At about a monthoff the drug, PCR was 0.03; at 11 weeks it was 2.06 - lost CCyR? Have returned to 50 mg Sprycel for 3 weeks, intending to reduce to 20 mg going forward.
Posted 28 July 2015 - 06:04 PM
Thanks a zillion Trey. I was hoping to get to 0.01 but my PCR came out at 0.07...report also said IS scale is 0.03%.Doctor said numbers are still down and I am doing well Ha ha , he didn't say, "not to worry today".
Does that mean I should worry? I hope it's a blip.
My blood was tested at GenPath not LabCorp as has been the case since 1/14. I was worried because my onc's group was swallowed by a bigger predatory factory like group. Report lacked the tracking graph I had gotten used to - guess because they have no data for me. &^%$%
I sure hope the number doesn't rise higher in 3 mos.
But I will try to remain calm, sort of!!!
Appreciate all of your knowledge and willingness to help us...you really have explained lots, better than my onc ever has.
DX-1/14....wbc....55....100mg Sprycel-1 wk after DX....periorbital edema, fatigue,
70mg Sprycel...11/4/17....40 mg prednisone (7 days)....thoracentisis...10/26/17
tremendous reduction w periorbital edema and fatigue
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