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looking for MIMI

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#1 natchu72


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Posted 05 June 2015 - 06:47 PM

I am looking for a Mimi who has PV. I used to talk with her here when I was dx'd in 2009 with ET. Mimi was in New Orleans area at that time..maybe someone has heard from her.? thanks in advance..-Natalie

#2 hannibellemo


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Posted 06 June 2015 - 06:57 AM

There is a board for myelodysplastic syndromes, you might try posting there


Good luck finding MIMI.



"You can't change the direction of the wind but you can adjust your sails."

DX 12/08; Gleevec 400mg; liver toxicity; Sprycel 100mg.; CCyR 4/10; MMR 8/10; Pleural Effusion 2/12; Sprycel 50mg. Maintaining MMR; 2/15 PCRU; 8/16 drifting in and out of undetected like a wave meeting the shore. Retired 12/23/2016! 18 months of PCRU, most recent at Mayo on 7/25/17 was negative at their new sensitivity reporting of 0.003.<p>

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