Posted 20 May 2015 - 07:17 AM
Hi everyone, Well today is my 5 year Cancerversary, Hard to believe! And I have never made it to MMR yet. I'm still jumping around pretty much the whole time. Last PCR was .380 something like that. At least I'm finally at 3 months again. Today I go for a new PCR. So time will tell.
So, to all the new people you can go on through life even though the numbers drive you crazy and they jump around. It's just the new normal.
Have a great holiday weekend Everyone!
DX 5-2010 Started normal hydra then Gleevec for 9 months stopped working
Tasigna after 5 pills pancreatis numbers jumped up quickly
Started Sprycel 100, 8-2010 for a 3 years went down to 50 mg numbers at one point really jumped up quickly
currently on 70 mg for last 2-3 years trying to get onc to reduce dose Numbers never stabilize never MMR till 4-2017 bearly and jump up and down in and out of MMR stayed MMR for 3 months then
After 6 years on sprycel fluid on both lungs, drained still have some fluid on lungs, and currently off drug 4 months now
numbers lower then ever go figure I've never been this low of a number
last 2 tests .0686 and .0181 !!