http://www.patientpo...r-cml-treatment
A Changing Paradigm for CML Treatment
Started by
gerry
, May 17 2015 12:08 AM
4 replies to this topic
#2
pammartin
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Posted 17 May 2015 - 07:50 AM
Great read Gerry, Thanks for sharing.
#3
Gail's
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Posted 17 May 2015 - 08:52 PM
I watched some of the personal stories on the patient stories tab of the patient power site, Gerry. Loved Jan Geissler's obviously educated, articulate presentation on the stop trials. Couldn't paste it here for you since all that kept downloading was my pics of Korea that no one probably cares about. Just scroll down to his 2013 interview.
Diagnosed 1/15/15
FISH 92%
BMB 9:22 translocation
1/19/15 began 400 mg gleevec
1/22/15 bcr 37.2 IS
2/6/15 bcr 12.5 IS
3/26/15 bcr 10.3 IS
6/29/15 bcr 7.5 IS
9/24/15 bcr 0.8 IS
1/4/16 bcr 0.3 IS
Started 100 mg dasatinib, mutation analysis negative
4/20/16 bcr 0.03 IS
8/8/16 bcr 0.007 IS
12/6/16 bcr 0.002 IS
Lowered dasatinib to 70 mg
4/10/17 bcr 0.001 IS
Lowered dasatinib to 50 mg
7/5/17 bcr 0.004 IS
8/10/17 bcr 0.001. Stopped TKI in prep for September surgery.
9/10/17 bcr 0.006
10/10/17 bcr 0.088
FISH 92%
BMB 9:22 translocation
1/19/15 began 400 mg gleevec
1/22/15 bcr 37.2 IS
2/6/15 bcr 12.5 IS
3/26/15 bcr 10.3 IS
6/29/15 bcr 7.5 IS
9/24/15 bcr 0.8 IS
1/4/16 bcr 0.3 IS
Started 100 mg dasatinib, mutation analysis negative
4/20/16 bcr 0.03 IS
8/8/16 bcr 0.007 IS
12/6/16 bcr 0.002 IS
Lowered dasatinib to 70 mg
4/10/17 bcr 0.001 IS
Lowered dasatinib to 50 mg
7/5/17 bcr 0.004 IS
8/10/17 bcr 0.001. Stopped TKI in prep for September surgery.
9/10/17 bcr 0.006
10/10/17 bcr 0.088
#4
gerry
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Posted 17 May 2015 - 09:59 PM
I think I've pasted that link on the forum previously. 
And you're wrong about your pics - I know I like looking at people's holiday snaps.
#5
pammartin
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Posted 18 May 2015 - 12:32 AM
Me too!
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