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Personal cessation trial continues.


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#41 Gail's

Gail's

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Posted 23 May 2015 - 11:41 AM

My understanding is that cml is one of those cancers that so far does not seem to be curable. It would be interesting to find out if a person who was undetectable for many years died from another cause and actually had a detailed enough autopsy to see if the mother ship sc are actually in those bone marrow niches or not. Obviously a slow expensive study given the very select group of people. Kaiser does a lot of research mainly because it has a million members with electronic med records which are easier to "mine" for data.
Diagnosed 1/15/15
FISH 92%
BMB 9:22 translocation
1/19/15 began 400 mg gleevec
1/22/15 bcr 37.2 IS
2/6/15 bcr 12.5 IS
3/26/15 bcr 10.3 IS
6/29/15 bcr 7.5 IS
9/24/15 bcr 0.8 IS
1/4/16 bcr 0.3 IS
Started 100 mg dasatinib, mutation analysis negative
4/20/16 bcr 0.03 IS
8/8/16 bcr 0.007 IS
12/6/16 bcr 0.002 IS
Lowered dasatinib to 70 mg
4/10/17 bcr 0.001 IS
Lowered dasatinib to 50 mg
7/5/17 bcr 0.004 IS
8/10/17 bcr 0.001. Stopped TKI in prep for September surgery.
9/10/17 bcr 0.006
10/10/17 bcr 0.088




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