Hubby just had his 2 week blood check, and his white counts are already back to normal, and he can now go to every other week for checks. I wont have his full lab results til later, but was so excited I just had to share! It seems like a really quick response and hoping it continues!
10 replies to this topic
#2
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Posted 24 April 2015 - 01:11 PM
Wow. I'm so happy for you both! That was quick.
#3
Dom
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Posted 24 April 2015 - 05:08 PM
Very good -- and extraordinary -- news. I went for weekly blood tests (and EKG because of a heart problem) for the first 6 months. Now it's every 3 months, soon every 6 months. So ... congratulations!
What TKI is he on? I'm on Gleevec.
Diagnosed in February 2014. Started Imatinib 400 in April.
2014: 3.18 0.91
2015: 0.22 0.16 0.04 0.55
2016: 0.71 0.66
(Started Imatinib 600 in April 2016)
2016: 0.42 0.13 0.45
2017: 0.17 0.06 0.10 0.06 0.34
#4
Gail's
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Posted 24 April 2015 - 08:03 PM
Yay! Sounds like a good first response! I found out from the onc pharmacist that I still have to do monthly labs. Said he can't refill gleevec till he sees them.
Diagnosed 1/15/15
FISH 92%
BMB 9:22 translocation
1/19/15 began 400 mg gleevec
1/22/15 bcr 37.2 IS
2/6/15 bcr 12.5 IS
3/26/15 bcr 10.3 IS
6/29/15 bcr 7.5 IS
9/24/15 bcr 0.8 IS
1/4/16 bcr 0.3 IS
Started 100 mg dasatinib, mutation analysis negative
4/20/16 bcr 0.03 IS
8/8/16 bcr 0.007 IS
12/6/16 bcr 0.002 IS
Lowered dasatinib to 70 mg
4/10/17 bcr 0.001 IS
Lowered dasatinib to 50 mg
7/5/17 bcr 0.004 IS
8/10/17 bcr 0.001. Stopped TKI in prep for September surgery.
9/10/17 bcr 0.006
10/10/17 bcr 0.088
FISH 92%
BMB 9:22 translocation
1/19/15 began 400 mg gleevec
1/22/15 bcr 37.2 IS
2/6/15 bcr 12.5 IS
3/26/15 bcr 10.3 IS
6/29/15 bcr 7.5 IS
9/24/15 bcr 0.8 IS
1/4/16 bcr 0.3 IS
Started 100 mg dasatinib, mutation analysis negative
4/20/16 bcr 0.03 IS
8/8/16 bcr 0.007 IS
12/6/16 bcr 0.002 IS
Lowered dasatinib to 70 mg
4/10/17 bcr 0.001 IS
Lowered dasatinib to 50 mg
7/5/17 bcr 0.004 IS
8/10/17 bcr 0.001. Stopped TKI in prep for September surgery.
9/10/17 bcr 0.006
10/10/17 bcr 0.088
#5
shaynalee
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Posted 24 April 2015 - 08:16 PM
He is on sprycel 100mg. he has been doing nutrition support as well, so I think that has definitely helped!
#6
Billie Murawski
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Posted 24 April 2015 - 08:25 PM
Congratulations, seeing good results this fast sure does help relieve the anxiety.
#7
Billie Murawski
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Posted 24 April 2015 - 08:35 PM
Gail, I have been getting monthly bw ever since my dx in 2007. There is a lab just a few miles from me and I get my bw there, I don't know how far you have to travel for your bw, but if a lab is closer I'm sure they can take it for you. It hasn't been that long since your dx so your onc probably wants to keep an eye on you for awhile. Billie
#8
Damerault
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Posted 25 April 2015 - 10:19 PM
He is on sprycel 100mg. he has been doing nutrition support as well, so I think that has definitely helped!
I am curious as to what nutrition advice he was given? Thanks.
11/29/2013 Diagnosis PLT 538 K/uL HGB 6.2 G/DL, HCT 18.5% WBC 557.00 K/uL Enlarged Spleen
Sprycel 100 MG
Hydroxyurea initially 4 capsules daily
By 4/2014 PLT 27, WBC and RBC Low. Off Sprycel for 3 weeks
After 3 weeks, blood counts normal, no mutation, back on Sprycel 50 MG
5/2014 PLT too Low off Sprycel 4 weeks
6/2014 started Tasigna
Side Effects- Nauseous, Headaches, Tired
8/2014 second opinion Mass General CML Specialist
Continuous transfusions of RBC, PLTs and NEualasta to temp increase blood cells to fight off infection.
Remain on full dose Tasigna
Major p210 International Scale
05/11/2015 0.0950
09/08/2015 0.0782
01/19/2016 0.0310
04/28/2016 0.0161
07/25/2016 0.0244
11/04/2016 0.0140
02/06/2017 0.0129
05/23/2017 0.0087
Today 0.0000
Be well, Diane.
#9
shaynalee
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Posted 26 April 2015 - 10:27 AM
Vitamin d3, curcumin, b2 and magnesium
#10
Susan61
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Posted 28 April 2015 - 05:52 PM
That is great news. Sounds like he is responding very well. It gets better as time goes on. I am on Gleevec, but I only get blood work every 3 months, but I am one of the oldies here who has had CML for a long time.
#11
August1
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Posted 29 April 2015 - 05:18 PM
Congratulations. That is great news. Thanks also for posting the nutrition plan.
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