Thanks to all who posted. It's been 8 weeks since diagnosis of CML and now 8 days on Tasigna. Reading through the posts answered more questions for me than speaking to my doctor, whom I like and trust. Hearing that I am not the only one with scalp pain was such a relief.
What I take away from all this is that this diagnosis is similar to a legal case (I was a judge and now a law prof) in that reading, gathering info and then going back and reading again and making sense of the info is the way to proceed. Trey, thanks for your posting on CML testing. Now I can go back and make sense of the LLS booklet. I hope I can be my own health advocate as many emphasize , but the fatigue I am experiencing now makes me doubt it. How do all of you find time to deal with this along with just living your life and all that encompasses ?