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Race and CML....I'm pondering something....


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#1 jmoorhou

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Posted 16 April 2015 - 11:50 PM

Hi all, have you noticed that the countries that have cessation trials, and thus perhaps high rates of CML, are England, Sweden, France which are caucasian as opposed to Mediterranean or African.

 

Interesting......makes you wonder if race has something to do with it CML.

 

I agree with what has been said, wish I could delete this post.


Diagnosed 3/2014 WBC 28 Non detectable within 3 monthsGleevec 400 mg 5/2014 one hour after dinner really improves nausea300 mg 12/15/2016200 mg and 300 mg Gleevec 2/25/2017 (after 3 years on Gleevec) For last four months taking 300 mg per day. Last CMC showed liver enzymes elevated, went to a good Naturopath and he recommended 4 Tumeric, 10,000 mg Vitamen D, and 3 milk thistle (silymarin) daily. Also use One<p>Day Detox Dandeloin tea, and Nettle Tea and a slice of ginger every day...in two months liver tests were below normal.Janis

#2 chriskuo

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Posted 17 April 2015 - 01:19 AM

I'm missing how cessation trials would be linked to high rates of CML.



#3 gerry

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Posted 17 April 2015 - 02:03 AM

It is more to do with our health care systems - where government/taxes pay for it.



#4 Dom

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Posted 17 April 2015 - 11:50 AM

According to wiki: "The disease is more common in men than women, and more common in whites than African-Americans. The average age at diagnosis is 64 years, and this disease is rarely seen in children."

But these statistics are difficult to interpret. Do whites live longer than blacks? If yes, then the "64 years" thing will confound the interpretation. Since we don't know what causes the disease, race is not important.

Diagnosed in February 2014. Started Imatinib 400 in April.
2014:     3.18     0.91
2015:     0.22     0.16     0.04     0.55
2016:     0.71     0.66

(Started Imatinib 600 in April 2016)
2016:     0.42     0.13     0.45
2017:     0.17     0.06     0.10     0.06     0.34


#5 rcase13

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Posted 17 April 2015 - 01:41 PM

I wonder why it normally hits older people. I was 44 when diagnosed. I wish it could have waited!

10/01/2014 100% Diagnosis (WBC 278k, Blasts 6%, Spleen extended 20cm)

01/02/2015 0.06% Tasigna 600mg
04/08/2015 0.01% Tasigna 600mg
07/01/2015 0.01% Tasigna 600mg
10/05/2015 0.02% Tasigna 600mg
01/04/2016 0.01% Tasigna 600mg
04/04/2016 PCRU Tasigna 600mg
07/18/2016 PCRU Tasigna 600mg
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01/09/2017 PCRU Tasigna 600mg
04/12/2017 PCRU Tasigna 600mg
10/16/2017 PCRU Tasigna 600mg
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#6 hannibellemo

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Posted 17 April 2015 - 02:25 PM

 

Hi all, have you noticed that the countries that have cessation trials, and thus perhaps high rates of CML, are England, Sweden, France which are caucasian as opposed to Mediterranean or African.

 

Interesting......makes you wonder if race has something to do with it CML.

 

I agree with what has been said, wish I could delete this post.

 

I asked this question on the technology board. I thought I had deleted one of my posts in the past but I can't remember for sure.


Pat

 

"You can't change the direction of the wind but you can adjust your sails."

DX 12/08; Gleevec 400mg; liver toxicity; Sprycel 100mg.; CCyR 4/10; MMR 8/10; Pleural Effusion 2/12; Sprycel 50mg. Maintaining MMR; 2/15 PCRU; 8/16 drifting in and out of undetected like a wave meeting the shore. Retired 12/23/2016! 18 months of PCRU, most recent at Mayo on 7/25/17 was negative at their new sensitivity reporting of 0.003.<p>





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