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Hair dye and gleevec?


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#1 ------

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Posted 10 April 2015 - 07:02 PM

I had it dyed when I was on Hydrea and had no problems.

#2 Antilogical

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Posted 10 April 2015 - 07:45 PM

Dyed my hair blue for the holidays.  All I got was compliments.....


Dx: Sudden severe anemia detected 07/2011, followed by WBC spike. CML Dx 02/2012.

Rx: 03/2012-Gleevec400.  Reduced 02/2013 to Gleevec300 due to side effects (low blood counts).

Response: PCR-Und within 7 mo. on G400. Maintained MMR4-MMR4.5 on G300. PCR-Und since 02/2016.


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Posted 10 April 2015 - 08:36 PM

Cool! Thanks.

#4 jmoorhou

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Posted 10 April 2015 - 09:45 PM

No, but hair dye especially dark is known to cause Leukemia, if you do enough research on the net.  sorry don't want to scare you but I was dying my hair ALOT in the year before I was diagnosed..


Diagnosed 3/2014 WBC 28 Non detectable within 3 monthsGleevec 400 mg 5/2014 one hour after dinner really improves nausea300 mg 12/15/2016200 mg and 300 mg Gleevec 2/25/2017 (after 3 years on Gleevec) For last four months taking 300 mg per day. Last CMC showed liver enzymes elevated, went to a good Naturopath and he recommended 4 Tumeric, 10,000 mg Vitamen D, and 3 milk thistle (silymarin) daily. Also use One<p>Day Detox Dandeloin tea, and Nettle Tea and a slice of ginger every day...in two months liver tests were below normal.Janis

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Posted 10 April 2015 - 10:10 PM

Well I didn't dye much before maybe 6 times in the last 20 years and not dark my natural hair hair color is already black I'm doing brown I already have leukemia so I might as well go for it.

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Posted 10 April 2015 - 10:16 PM

I have always heard about the hair dye cancer thing didn't know it was leukemia specifically. So many products and food cause cancer no telling what I got it from maybe none at all.

#7 Billie Murawski

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Posted 10 April 2015 - 10:17 PM

I had brown hair I think (been coloring the grey for years) after I started Gleevac it got really grey so I had it cut and colored blond. I did that for 3 years, once I went on Sprycel my hair won't hold the color it's white, I had it done professionally and it lasted less than 4 weeks, so I colored it myself,same thing it just goes back to white, so I let it grow a bit longer the way I used to wear it but it's still white. Everyone says it's a pretty color but I'm not ready for white hair, I wanted that when I was a teen (duh). I'm just thankful I have hair it could be worse. My hair is naturally wavy but when I was on Gleevac it was down right curly!



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Posted 10 April 2015 - 10:22 PM

Mine is just plain nappy but I think the Hydrea changed it my naps are a little looser now plus it stopped growing all together while I was on the Hydrea. I am dying mine brown because I have a thin spot in the top and the brown camouflages it. I have gray but not enough yet. I'm with you glad to have the hair I do. I will stop dying it once it grows out some more so I can cover my spot.

#9 Billie Murawski

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Posted 10 April 2015 - 10:27 PM

If hair dye caused cml I would have had it when I was 18!  Wash that grey right out of your hair ladies. :D  That myth that hair color causes cancer is older than I am; yeah I have C but I'm sure that it isn't from coloring, if that was the case there would be no women left on the planet.When you look better you feel better.     Billie



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Posted 10 April 2015 - 10:50 PM

I totally agree Billie!!!

#11 gerry

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Posted 10 April 2015 - 10:53 PM

I continue to dye my hair and I'm off the TKI and still negative so not sure about that theory.

 

Was an interesting show on the tv here the other night, around PCBs in plastics etc. One of the ladies had tried to reduce the amount of chemicals in her life, makeup, shampoos, using glass instead of plastic etc and the journalist had done nothing. When they did measurements of their bloods, it turned out they were both around the same level as there is so much of this stuff in our environment.

 

http://www.businessi...enopause-2015-1



#12 Gail's

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Posted 10 April 2015 - 11:25 PM

On the topic of hair dye, I've had some gray hairs beginning the last 10 years. Once I started the gleevec noticed lots more gray and white hairs. Especially around my face. My hair is dark brown so they were getting noticeable. I was thinking about coloring the gray with hair dye, but when I talked to my hairdresser, she thought it would be fun to make more white and highlight it. So I said sure, why not? I now have a Cruella Deville white stripe in the front around my face about 2 inches wide. It's pretty and I get tons of compliments. For fun we added a tiny stripe of purple but it faded right out. Sure perked me up to do something different!
Diagnosed 1/15/15
FISH 92%
BMB 9:22 translocation
1/19/15 began 400 mg gleevec
1/22/15 bcr 37.2 IS
2/6/15 bcr 12.5 IS
3/26/15 bcr 10.3 IS
6/29/15 bcr 7.5 IS
9/24/15 bcr 0.8 IS
1/4/16 bcr 0.3 IS
Started 100 mg dasatinib, mutation analysis negative
4/20/16 bcr 0.03 IS
8/8/16 bcr 0.007 IS
12/6/16 bcr 0.002 IS
Lowered dasatinib to 70 mg
4/10/17 bcr 0.001 IS
Lowered dasatinib to 50 mg
7/5/17 bcr 0.004 IS
8/10/17 bcr 0.001. Stopped TKI in prep for September surgery.
9/10/17 bcr 0.006
10/10/17 bcr 0.088

#13 Billie Murawski

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Posted 10 April 2015 - 11:27 PM

gerry, Do you remember who it was that her hair went straight on one side and curly on the other side when she went on Gleevac poor woman she was having a heck of a time.



#14 Billie Murawski

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Posted 10 April 2015 - 11:30 PM

Gail, I wonder if my hair would hold the color pink that is all the rage right now!



#15 Billie Murawski

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Posted 10 April 2015 - 11:53 PM

I continue to dye my hair and I'm off the TKI and still negative so not sure about that theory.

 

Was an interesting show on the tv here the other night, around PCBs in plastics etc. One of the ladies had tried to reduce the amount of chemicals in her life, makeup, shampoos, using glass instead of plastic etc and the journalist had done nothing. When they did measurements of their bloods, it turned out they were both around the same level as there is so much of this stuff in our environment.

 

http://www.businessi...enopause-2015-1

gerry, I feel that we are exposed to so many things that some people are susceptible to C and some aren't and it's probably going to get worse Were' told to recycle and not use plastic but how do we even find things that aren't even plastic, save the trees don't use paper but look at all the junk mail we get that stuff makes me crazy. Do you have a junk mail problem in Austraila dumb question I know just curious, it's such a cool country and you don't take any crap love it. Maybe someday I'll get there who knows I may come knocking at your door. I'll warn you first.

I read that article you posted and it sure does seem like menopause comes earlier and earlier now they call it peri-menopause starting around age 39, geeze my daughter my nieces their friends are all going wacko.       



#16 gerry

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Posted 11 April 2015 - 01:39 AM

Hi Billie,

We have signs for our post boxes if you don't want junk mail. I'm not sure about how the other Australian states run, but where I live we have bins for everything - general rubbish, recycling and green bins for plants. One of the best places for recycling here is South Australia, they pay money for the return of bottles etc http://www.epa.sa.go...tainer_deposits  This in turn has also reduced the level of PBAs from plastics etc getting into the food chain.

 

The other issue is we live longer now, so more chance of your cells not reproducing correctly.

 

With women waiting longer to have babies, earlier menopause starts to become  real issue.



#17 Gail's

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Posted 11 April 2015 - 01:57 AM

Billie, for a few thousand bucks I would have gone pastel purple all over but was too chicken. I think pink should be reserved only for fun lovin women over 50. And purple too. Let the young chicks stay their natural color and let us older girls have some color!
Diagnosed 1/15/15
FISH 92%
BMB 9:22 translocation
1/19/15 began 400 mg gleevec
1/22/15 bcr 37.2 IS
2/6/15 bcr 12.5 IS
3/26/15 bcr 10.3 IS
6/29/15 bcr 7.5 IS
9/24/15 bcr 0.8 IS
1/4/16 bcr 0.3 IS
Started 100 mg dasatinib, mutation analysis negative
4/20/16 bcr 0.03 IS
8/8/16 bcr 0.007 IS
12/6/16 bcr 0.002 IS
Lowered dasatinib to 70 mg
4/10/17 bcr 0.001 IS
Lowered dasatinib to 50 mg
7/5/17 bcr 0.004 IS
8/10/17 bcr 0.001. Stopped TKI in prep for September surgery.
9/10/17 bcr 0.006
10/10/17 bcr 0.088

#18 DebDoodah22

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Posted 11 April 2015 - 09:48 AM

Gail, Billie, Gerry, Mrs.DJ:

I am kinda jealous of you gals that still have enough hair to color and style...my fine blonde hair has been washing off my head. I have more in my brush and in the sink every day... ...and yep it's gone from a mostly blondish tone to some kinda dishwater silver....63 sucks some days! I have been toying with the idea of chopping off this thin stuff but my hair is so fine...not sure that would result in an improvement.

Gail...your hair color solution sounds like great fun! I work on a College campus and several of the faculty in their 50-60s are adding in deep purple or pink...the "kids" seem to like it and it makes a sassy statement! :)

I say seize the day and color while you may!

#19 jmoorhou

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Posted 11 April 2015 - 10:55 AM

Debdoodah, are you on Gleevec or Sprycel...Gleevec is not supposed to affect your hair, only thinning..


Diagnosed 3/2014 WBC 28 Non detectable within 3 monthsGleevec 400 mg 5/2014 one hour after dinner really improves nausea300 mg 12/15/2016200 mg and 300 mg Gleevec 2/25/2017 (after 3 years on Gleevec) For last four months taking 300 mg per day. Last CMC showed liver enzymes elevated, went to a good Naturopath and he recommended 4 Tumeric, 10,000 mg Vitamen D, and 3 milk thistle (silymarin) daily. Also use One<p>Day Detox Dandeloin tea, and Nettle Tea and a slice of ginger every day...in two months liver tests were below normal.Janis

#20 Antilogical

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Posted 11 April 2015 - 05:11 PM

I colored my hair once about 40 years ago with a henna rinse, and then last year with blue streaks.  My neighbor has never colored his hair (that I know of - but it doesn't look touched up).  Both of us got CML.  I think the hair-dye theory is a big FAIL.


Dx: Sudden severe anemia detected 07/2011, followed by WBC spike. CML Dx 02/2012.

Rx: 03/2012-Gleevec400.  Reduced 02/2013 to Gleevec300 due to side effects (low blood counts).

Response: PCR-Und within 7 mo. on G400. Maintained MMR4-MMR4.5 on G300. PCR-Und since 02/2016.





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