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tasigna and food interaction


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#21 Trey

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Posted 05 April 2015 - 08:53 PM

I eat sharp orange cheese.  That way I get my cheese and citrus at the same time.......Did I ever mention Texas Ruby Red grapefruit?  Goes great with orange cheese.



#22 Antilogical

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Posted 06 April 2015 - 12:02 PM

I have never heard of sharp orange cheese, though my extra sharp colby longhorn cheese is orange.  Does that count?


Dx: Sudden severe anemia detected 07/2011, followed by WBC spike. CML Dx 02/2012.

Rx: 03/2012-Gleevec400.  Reduced 02/2013 to Gleevec300 due to side effects (low blood counts).

Response: PCR-Und within 7 mo. on G400. Maintained MMR4-MMR4.5 on G300. PCR-Und since 02/2016.


#23 carrie

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Posted 08 April 2015 - 01:52 PM

Billie suggested we should write a Gleevec Sharts Song.

I am a K-8 teacher....I change lyrics to tunes all the time.

This is sung to the tune Twinkle Twinkle Little Star..........

 

Twinkle Twinkle Little Shart

How I wish you were just a fart

Take your pill,then wait and see

You had some gas with brown debris

Twinkle Twinkle Little Shart

Now I'm afraid to release that fart.


Diagnosed   2007

On Gleevec for 10 years

Results from 2007-2012 not shown below

International Scale from 2012 until now

Never went to 0

0.166

0.038

1.155

0.789

0.104

0.099

0.701

1.986

1.063

1.799

2.817

1.832

3.449

1.050

1.438

3.376

3.370

3.370

2.580

8.990

4.250

6.176

14.109   Changing to Tasigna 7/7/17

 

7/28/17  800 mgs Tasigna

10/5/17  600 mgs Tasigna (Lots of bad side effects)

10/16/2017    PCR down to 0.141  

1/15/18          PCR down to  0.066   Dose reduction again. Now 400 mgs daily.


#24 JPD

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Posted 08 April 2015 - 03:35 PM

my debris, really just an "ooze" - is more putrid yellow.  And, yes, it still has a definite turkey gravy quality.

 

Every so often, depending on my flatulance level, I have to do periodic spot-check with maintenence wipes.  I love cancer!


January 15: .53%

April 15:       .78%

July 15:      1.1% - upped dosage to 400mg after this test

Oct 15:       .85%

December 15:  .28%

March 16: .29%

July 16: .34%

October 16: .11%

January 17: .081%

April 17: .055%

July 17: .135%

Oct 17: .008%


#25 jmoorhou

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Posted 08 April 2015 - 07:17 PM

All my lipids are much better since I started Gleevec, probably because my sense of taste is diminished....hey that's one for Gleevec.


Diagnosed 3/2014 WBC 28 Non detectable within 3 monthsGleevec 400 mg 5/2014 one hour after dinner really improves nausea300 mg 12/15/2016200 mg and 300 mg Gleevec 2/25/2017 (after 3 years on Gleevec) For last four months taking 300 mg per day. Last CMC showed liver enzymes elevated, went to a good Naturopath and he recommended 4 Tumeric, 10,000 mg Vitamen D, and 3 milk thistle (silymarin) daily. Also use One<p>Day Detox Dandeloin tea, and Nettle Tea and a slice of ginger every day...in two months liver tests were below normal.Janis

#26 Trey

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Posted 09 April 2015 - 11:01 AM

You seem to have gotten Carried away....



#27 carrie

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Posted 09 April 2015 - 11:29 AM

I often do get "carried" away. Laughter and humor helps me to keep everything lighter. I am the "class clown" amongst the teachers here at our school. Now, JPD really has his description down pat. :0)


Diagnosed   2007

On Gleevec for 10 years

Results from 2007-2012 not shown below

International Scale from 2012 until now

Never went to 0

0.166

0.038

1.155

0.789

0.104

0.099

0.701

1.986

1.063

1.799

2.817

1.832

3.449

1.050

1.438

3.376

3.370

3.370

2.580

8.990

4.250

6.176

14.109   Changing to Tasigna 7/7/17

 

7/28/17  800 mgs Tasigna

10/5/17  600 mgs Tasigna (Lots of bad side effects)

10/16/2017    PCR down to 0.141  

1/15/18          PCR down to  0.066   Dose reduction again. Now 400 mgs daily.


#28 Billie Murawski

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Posted 09 April 2015 - 02:09 PM

carrie I love it, you have some real talent, keep writing songs and record them I'll buy one. Maybe you could write songs that really reflect what we go through in a humorous way like' I can't make up my mind what to put on my behind', prep H is good for wrinkles and roids, Anusol says it all etc. etc.Monkey Butt powder is silky and soft  my brain fog just kicked in. Carrie verse two. I bet your students could help but it might be x-rated!!!

My daughter sets up programs for disturbed children and children who come from bad homes ages 5-17 and you would not believe what these kids do and say especially the younger ones it boggles the mind. I don't envy your job.

  Let's get creative and stop being the doers.



#29 carrie

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Posted 09 April 2015 - 03:27 PM

Billie, I love your lyrics. I will try to put them into a child's song soon. 

 

It is so sad what young children see, hear, and do these days. The parents don't parent anymore. The children are starving for love, attention, and guidelines. They want rules and regulations but sadly the ones that have gone years without any, are now heading for serious trouble. I have taught for over 30 years. The difference I have witnessed from the beginning of my career until now is devastating to say the least. I work with Title I students, Special Education students, and children in a "regular" classroom. I wish I could teach the parents how to parent.

 

Thanks for your reply. When I was a little girl my dad's father had a place in Skytop Pennsylvania. We went there a couple of times. I would love to explore that area more. I am from Michigan but live in Arizona now.


Diagnosed   2007

On Gleevec for 10 years

Results from 2007-2012 not shown below

International Scale from 2012 until now

Never went to 0

0.166

0.038

1.155

0.789

0.104

0.099

0.701

1.986

1.063

1.799

2.817

1.832

3.449

1.050

1.438

3.376

3.370

3.370

2.580

8.990

4.250

6.176

14.109   Changing to Tasigna 7/7/17

 

7/28/17  800 mgs Tasigna

10/5/17  600 mgs Tasigna (Lots of bad side effects)

10/16/2017    PCR down to 0.141  

1/15/18          PCR down to  0.066   Dose reduction again. Now 400 mgs daily.





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