
Finally switched Oncs
#1
Posted 28 March 2015 - 11:53 AM
#2
Posted 29 March 2015 - 09:08 AM
#3
Posted 29 March 2015 - 06:50 PM
Good for you Kitty, It never hurts to get another opinion or three. After my pe a couple years ago my onc sent me to another onc in Pittsburg for his opinion, and when we go to Fla it's for about 3 months so I have an onc down there just in case I have a problem, I've had the same dx and treatment plan from all of them, it makes me feel more secure knowing I'm covered wherever I go!
Billie
#4
Posted 29 March 2015 - 11:08 PM
It never felt right to see him after that. Im not looking for a hand holder but I have to feel like you are doing your job 100%. He should have tested me earlier now, I am sure. And I could not stay and doubt my dr. would be giving that 100%.
Congrats on moving on. Just wondering how it went and if you told them your reasons. I did and it was no biggie to them. And did the record request go smoothly?
Dx 2/2015 BCR-ABL1 (p210) 85.2% (IS) 3/15
22% 5/15 0.13% 6/15 PCRU attained 9/15
Initial dose Sprycel 100 mg 3/15 Lowered 80 mg 5/15 Lowered 50 mg 1/16
Note: dose lowered bc of side effects - not bc onc wanted to reduce dosage
Sprycel: Currently 50 mg per day - taken 10 pm
#5
Posted 29 March 2015 - 11:44 PM
#6
Posted 30 March 2015 - 01:01 AM
The receptionist at my original doctors was always very chatty, but when I decided to change docs, she was almost straight out rude. I am very happy with my current doc, so glad I changed.
#7
Posted 04 April 2015 - 06:54 PM
Dear Kitty,
I saw an onc, Dr. Hamilton at Sloan Kettering in Basking Ridge who basically agreed with the onc I have at Steeple Chase. So I stayed at Steeple Chase which is closer to where I live. Dr. Hamilton seemed excellent . Sloan was larger/more formal than Steeple Chase and I knew I needed to be known by the staff.
Sorry you had problems with Sloan. Good luck. I know it's really hard to switch doctors.
Billie,
Great idea to have an onc in Florida. I did go to UrgentCare for irreg heart beats in South Carolina this winter and was just lucky to find a fabulous doctor who listened to me. I am going to research an onc.
Winespritzer
CML History....
DX-1/14....wbc....55....100mg Sprycel-1 wk after DX....periorbital edema, fatigue,
.385-4/14
.365-7/14
.13-10/14
.11-1/15
.045-4/15
.07-7/15
.06-10/15
.04-1/16
0.00- 4/16-10/17
70mg Sprycel...11/4/17....40 mg prednisone (7 days)....thoracentisis...10/26/17
tremendous reduction w periorbital edema and fatigue
#8
Posted 04 April 2015 - 10:40 PM
Hi winespritzer,
The cancer center gave me my records and I had an appt. with the onc in Fla before we left home. I had to go see him once, he wouldn't take me on as a patient until I saw him. His nurse made copies of my records for me, she said most places won't make copies, So I take those records with me when I go to Fla. I guess I better get them updated they're from 2008. We go to Sanibel Island and there is a lab on the Island so I can get my monthly bw there. And the doc who takes my blood is also a gp so if I get a cold or something down there he can treat me. My husbands family doesn't even acknowledge my illness, they don't do doctors, so now I have peace of mind knowing where to go for help.
It's a good idea to keep your records, that way if you had a problem while you were out of town, It sure would make it easier on you and the doctors treating you. If you,re gone a few months at a time it's a great idea to have an onc
#9
Posted 05 April 2015 - 09:29 AM
Dear Billie,
Thanks much for your response. I do take my records with me now. And that's a great idea to have an apt before I start to travel. I also know I need an on site lab in case I need lab work. That was one of my concerns at Hilton Head. None of the UrgentCares there do the blood work. Has to go to Emergency. And I am used to immediate results!
My onc in NJ doesn't take monthly bw - said I don't need it but I have so many other doctors I always sort of know what my cbc is.
Sounds like you've had CML since 2008. Hope you are faring well. I was diag on 1/14/14. My family on both sides is into doctors...maybe we're all hypochondriacs!
Do you get your meds in Sanibel? I loved Sanibel when we went there long ago. I still have a huge collection of shells.
Be well and thank you.
Winespritzer
CML History....
DX-1/14....wbc....55....100mg Sprycel-1 wk after DX....periorbital edema, fatigue,
.385-4/14
.365-7/14
.13-10/14
.11-1/15
.045-4/15
.07-7/15
.06-10/15
.04-1/16
0.00- 4/16-10/17
70mg Sprycel...11/4/17....40 mg prednisone (7 days)....thoracentisis...10/26/17
tremendous reduction w periorbital edema and fatigue
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