Advanced Member
Posted 27 March 2015 - 11:01 PM
Attention Stoners: I just have to share this. I started taking medical marijuana edibles for a few months each year starting 2009. After remember about munchies, I always stopped....
It was for sleep, since I cannot get to sleep on my own, and was tired of taking prescription meds.
Still wondering if this is what caused the CML.
Advanced Member
Posted 28 March 2015 - 08:48 AM
No! (Not that I am, or ever was, a stoner.) 
Pat
"You can't change the direction of the wind but you can adjust your sails."
DX 12/08; Gleevec 400mg; liver toxicity; Sprycel 100mg.; CCyR 4/10; MMR 8/10; Pleural Effusion 2/12; Sprycel 50mg. Maintaining MMR; 2/15 PCRU; 8/16 drifting in and out of undetected like a wave meeting the shore. Retired 12/23/2016! 18 months of PCRU, most recent at Mayo on 7/25/17 was negative at their new sensitivity reporting of 0.003.<p>
Advanced Member
Posted 28 March 2015 - 10:15 AM
i think not. cheech & chong are still alive and free of leukemia 
Advanced Member
Posted 28 March 2015 - 12:40 PM
i think not. cheech & chong are still alive and free of leukemia
Don't forget Willie Nelson and he's even older. Maybe I should move to Colorado and start using cannabis?
Advanced Member
Posted 28 March 2015 - 03:08 PM
Advanced Member
Posted 28 March 2015 - 04:18 PM
Willie Nelson, yes! I feel better.
Advanced Member
Posted 28 March 2015 - 05:23 PM
If MJ caused CML, I think we'd be seeing a lot more folks with it.
Dx: Sudden severe anemia detected 07/2011, followed by WBC spike. CML Dx 02/2012.
Rx: 03/2012-Gleevec400. Reduced 02/2013 to Gleevec300 due to side effects (low blood counts).
Response: PCR-Und within 7 mo. on G400. Maintained MMR4-MMR4.5 on G300. PCR-Und since 02/2016.
Advanced Member
Posted 28 March 2015 - 09:32 PM
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Posted 28 March 2015 - 09:38 PM
absolutely not.
January 15: .53%
April 15: .78%
July 15: 1.1% - upped dosage to 400mg after this test
Oct 15: .85%
December 15: .28%
March 16: .29%
July 16: .34%
October 16: .11%
January 17: .081%
April 17: .055%
July 17: .135%
Oct 17: .008%
Advanced Member
Posted 28 March 2015 - 09:58 PM
I've never done any of the things mentioned on this thread and still have CML. I have thought many times about what could have caused mine. I'm still not convinced it wasn't extremely high levels of stress. I know others would disagree, and I may be wrong, but I still wonder.
Dx: 01 March 2011
Sprycel 100 mg per day since dx
MMR: July 2013
numerous side effects
Thankful for the gift of each new day, and try to live it to the fullest
Advanced Member
Posted 28 March 2015 - 10:04 PM
dede - I sometimes wonder about stress too. But when you think about it - there are sooooo many stressed out people out there and CML is still very rare. I think sometimes we just WANT there to be a cause, so we can at least blame SOMETHING. When the truth, I believe, is just a genetic screwup.
January 15: .53%
April 15: .78%
July 15: 1.1% - upped dosage to 400mg after this test
Oct 15: .85%
December 15: .28%
March 16: .29%
July 16: .34%
October 16: .11%
January 17: .081%
April 17: .055%
July 17: .135%
Oct 17: .008%
Advanced Member
Posted 29 March 2015 - 10:30 PM
Dx 2/2015 BCR-ABL1 (p210) 85.2% (IS) 3/15
22% 5/15 0.13% 6/15 PCRU attained 9/15
Initial dose Sprycel 100 mg 3/15 Lowered 80 mg 5/15 Lowered 50 mg 1/16
Note: dose lowered bc of side effects - not bc onc wanted to reduce dosage
Sprycel: Currently 50 mg per day - taken 10 pm
Advanced Member
Posted 29 March 2015 - 10:56 PM
I tried mari,marj,mdj,marra, Pot one time in my early 30's I was having a terrible time with my nerves and my husband brought me a ma ma cigaree,smoke home for me to try, I laughed and laughed then I couldn't stop crying because I felt so guilty because I had 2 children and if they tried it I would be heartbroken. Thank God I didn't have problems like that with my kids, and they're grown adults now. When I was on Gleevac and I got so sick I wanted to try it, even now I get sick once in a while and I'd use it if it helped. I think. I have a couple pain pills left over from minor surgery, I keep them in case I get a migraine. Well I'm getting migraines again and I'm afraid to take one. Excuse the spelling I just can't spell anymore anybody else have that problem?
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