Posted 07 April 2015 - 12:19 AM
Yes, yes, and yes - I have had both those problems. I went to a urologist and he was going to do some expensive testing, but I decided not to, and it turned out it was just fluid retention deciding that it wanted to be released every now and then - a lot, in one day. I found I could change the frequency depending on what I was eating and how much sodium was in it. Every now and then I take a diuretic now too, which has the same symptoms...but at least I know when it's coming and that seems to keep it quiet for a while.
As for the tongue thing, let me know what your doctor finds out - I have what sounds like a very similar thing. Every few weeks or so, I get a very sore tongue in the same spot in the middle towards the back. Usually I have to trim it, or pick bits off with some tweezers (too much information, I know!) because it hurts and I tend to try and scrape it off with my teeth. I figured it has something to do with cell growth now being slower, or it might be something called lichen planus? Which I think can come from lowered immunity.
Diagnosed 9 June 2011, Glivec 400mg June 2011-July 2017, Tasigna 600mg July 2017-present (switched due to intolerable side effects, and desire for future cessation attempt).
Commenced monthly testing when MR4.0 lost during 2012.
2017: <0.01, <0.01, 0.005 (200mg Glivec, Adelaide) <0.01, 0.001 (new test sensitivity)
2016: <0.01, <0.01, PCRU, 0.002 (Adelaide)
2015: <0.01, <0.01, <0.01, 0.013
2014: PCRU, <0.01, <0.01, <0.01, <0.01
2013: 0.01, 0.014, 0.016, 0.026, 0.041, <0.01, <0.01
2012: <0.01, <0.01, 0.013, 0.032, 0.021
2011: 38.00, 12.00, 0.14