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Frequent urination and Gleevec

Started by jmoorhou , Mar 14 2015 09:16 PM

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4 replies to this topic

#1 jmoorhou

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LocationOutside of San Francisco

Posted 14 March 2015 - 09:16 PM

I've been on Gleevec for a year now, no detectable leukemia cells, but in the last five months or so have terrible frequent urination.

Anyone experience this.

I'm also 62 was diagnosed 13 months ago and had a problem with this before the diagnosis now it's really affecting my quality of life.

I have to start taking the Oxybutnin again but it barely puts a dent..

Diagnosed 3/2014 WBC 28 Non detectable within 3 monthsGleevec 400 mg 5/2014 one hour after dinner really improves nausea300 mg 12/15/2016200 mg and 300 mg Gleevec 2/25/2017 (after 3 years on Gleevec) For last four months taking 300 mg per day. Last CMC showed liver enzymes elevated, went to a good Naturopath and he recommended 4 Tumeric, 10,000 mg Vitamen D, and 3 milk thistle (silymarin) daily. Also use One<p>Day Detox Dandeloin tea, and Nettle Tea and a slice of ginger every day...in two months liver tests were below normal.Janis

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#2 Billie Murawski

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LocationErie,Pa

Posted 14 March 2015 - 11:03 PM

Hi jm,

Have you seen your gynecologist about this sometimes a womans bladder can fall and a minor surgical procedure can repair it.

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#3 Gail's

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634 posts

Posted 15 March 2015 - 03:14 PM

Check for bladder infection too.

Diagnosed 1/15/15
FISH 92%
BMB 9:22 translocation
1/19/15 began 400 mg gleevec
1/22/15 bcr 37.2 IS
2/6/15 bcr 12.5 IS
3/26/15 bcr 10.3 IS
6/29/15 bcr 7.5 IS
9/24/15 bcr 0.8 IS
1/4/16 bcr 0.3 IS
Started 100 mg dasatinib, mutation analysis negative
4/20/16 bcr 0.03 IS
8/8/16 bcr 0.007 IS
12/6/16 bcr 0.002 IS
Lowered dasatinib to 70 mg
4/10/17 bcr 0.001 IS
Lowered dasatinib to 50 mg
7/5/17 bcr 0.004 IS
8/10/17 bcr 0.001. Stopped TKI in prep for September surgery.
9/10/17 bcr 0.006
10/10/17 bcr 0.088

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#4 Pin

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202 posts

Posted 15 March 2015 - 05:45 PM

Do you have issues with fluid retention? I have this sometimes, depending on how much fluid I am retaining, sometimes my body just decides enough is enough and gets rid of some of it for me.

Diagnosed 9 June 2011, Glivec 400mg June 2011-July 2017, Tasigna 600mg July 2017-present (switched due to intolerable side effects, and desire for future cessation attempt).

Commenced monthly testing when MR4.0 lost during 2012.

2017: <0.01, <0.01, 0.005 (200mg Glivec, Adelaide) <0.01, 0.001 (new test sensitivity)

2016: <0.01, <0.01, PCRU, 0.002 (Adelaide)

2015: <0.01, <0.01, <0.01, 0.013

2014: PCRU, <0.01, <0.01, <0.01, <0.01

2013: 0.01, 0.014, 0.016, 0.026, 0.041, <0.01, <0.01

2012: <0.01, <0.01, 0.013, 0.032, 0.021

2011: 38.00, 12.00, 0.14