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Platelet Function Defect


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#1 CML2012

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Posted 04 March 2015 - 05:14 PM

Hey everyone it has been a while since I have posted.  I recently had a basel skin cancer removed off my face and had a hematoma.  Well now I have to have oral surgery and my Onc is afraid I will have a hematoma that could cause me to smother.  Scary!!  My platelets are 180ish but he says I may have a platelet function defect which could lead to a hematoma regardless of my count.  Any info would be greatly appreciated.  My surgery is on hold for now.  I was diagnosed in Dec 2012 at 53% on my PCR for BCR/ABL.  I am currently at .09% so not quite at a log 3 reduction after 27 months.


Diagnosed CML December 2012
Gleevec 400 mg
PCR 53%, 41%, 1.69%, 5.63% (Mutation test negative) September 2013
Sprycel 100 mg
PCR 1.1%, 0.2%, 0.2%, 0.6%, .09%, .06%, PCRU June 2015, PCRU Sept 2015, PCRU Dec 2015, 0.042% Mar 2016, 0.122% April 2016, 0.19% June 2016, 0.176% July 2016, .052% Sept 2016, .031% Nov 2016
Diagnosed Basel Skin Cancer December 2012, October 2014 (All cancer removed)
Diagnosed Melanoma April 2015 (All cancer removed)

#2 Trey

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Posted 04 March 2015 - 07:23 PM

Have your doc do a "bleeding time" test. 

http://en.wikipedia....i/Bleeding_time



#3 PhilB

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Posted 05 March 2015 - 04:45 AM

https://www.youtube.com/watch?v=oVWjAeAa52o



#4 gerry

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Posted 06 March 2015 - 12:40 AM

Thanks Phil - you must know this movie pretty well . :lol:



#5 PhilB

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Posted 06 March 2015 - 06:26 AM

It must be 30 years since I last saw it, but the instant Trey mentioned 'bleeding time' it was like it was yesterday!



#6 Gail's

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Posted 06 March 2015 - 04:40 PM

Must watch it philb. What's the title? It cracked me up when he said to the patient "this has nothing to do with you!"
Diagnosed 1/15/15
FISH 92%
BMB 9:22 translocation
1/19/15 began 400 mg gleevec
1/22/15 bcr 37.2 IS
2/6/15 bcr 12.5 IS
3/26/15 bcr 10.3 IS
6/29/15 bcr 7.5 IS
9/24/15 bcr 0.8 IS
1/4/16 bcr 0.3 IS
Started 100 mg dasatinib, mutation analysis negative
4/20/16 bcr 0.03 IS
8/8/16 bcr 0.007 IS
12/6/16 bcr 0.002 IS
Lowered dasatinib to 70 mg
4/10/17 bcr 0.001 IS
Lowered dasatinib to 50 mg
7/5/17 bcr 0.004 IS
8/10/17 bcr 0.001. Stopped TKI in prep for September surgery.
9/10/17 bcr 0.006
10/10/17 bcr 0.088

#7 Marnie

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Posted 06 March 2015 - 07:33 PM

https://www.youtube.com/watch?v=oVWjAeAa52o

You gotta love British humor.  I love Doc Martin!  Best show ever.



#8 Trey

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Posted 06 March 2015 - 07:44 PM

See a resemblance?

 

 

Attached Files


Edited by Trey, 06 March 2015 - 07:46 PM.


#9 Billie Murawski

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Posted 06 March 2015 - 08:40 PM

I agree with Marnie I love british humor, doc martin, mrs. browns sons, Michael Crawford had a comedy series years ago and it was hysterical, that was before cable and we had a rotor something antenna so we could pick up Canadian shows too. I miss those days.



#10 Marnie

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Posted 06 March 2015 - 08:41 PM

Well, bummer.  I tried to photoshop Doc Martin's face (Martin Clunes) in, which would have been far better, but it's been so long since my Photoshop class, that I couldn't figure it out.  Maybe next time. . .



#11 Billie Murawski

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Posted 06 March 2015 - 08:45 PM

I gotta learn how to post a picture



#12 hannibellemo

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Posted 08 March 2015 - 07:59 AM

I was flipping through my amazon prime and came across Doc Martin and thought I should watch that series agin! Loved it!


Pat

 

"You can't change the direction of the wind but you can adjust your sails."

DX 12/08; Gleevec 400mg; liver toxicity; Sprycel 100mg.; CCyR 4/10; MMR 8/10; Pleural Effusion 2/12; Sprycel 50mg. Maintaining MMR; 2/15 PCRU; 8/16 drifting in and out of undetected like a wave meeting the shore. Retired 12/23/2016! 18 months of PCRU, most recent at Mayo on 7/25/17 was negative at their new sensitivity reporting of 0.003.<p>


#13 CML2012

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Posted 08 March 2015 - 10:17 AM

Love the video guys....I will definitely take all of this into consideration.  For some strange reason since they updated this site a few months ago I cannot find some of the topics I posted a year ago.  I guess they were lost with the update :-(

 


Diagnosed CML December 2012
Gleevec 400 mg
PCR 53%, 41%, 1.69%, 5.63% (Mutation test negative) September 2013
Sprycel 100 mg
PCR 1.1%, 0.2%, 0.2%, 0.6%, .09%, .06%, PCRU June 2015, PCRU Sept 2015, PCRU Dec 2015, 0.042% Mar 2016, 0.122% April 2016, 0.19% June 2016, 0.176% July 2016, .052% Sept 2016, .031% Nov 2016
Diagnosed Basel Skin Cancer December 2012, October 2014 (All cancer removed)
Diagnosed Melanoma April 2015 (All cancer removed)




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