Hey everyone it has been a while since I have posted. I recently had a basel skin cancer removed off my face and had a hematoma. Well now I have to have oral surgery and my Onc is afraid I will have a hematoma that could cause me to smother. Scary!! My platelets are 180ish but he says I may have a platelet function defect which could lead to a hematoma regardless of my count. Any info would be greatly appreciated. My surgery is on hold for now. I was diagnosed in Dec 2012 at 53% on my PCR for BCR/ABL. I am currently at .09% so not quite at a log 3 reduction after 27 months.
Platelet Function Defect
#1
Posted 04 March 2015 - 05:14 PM
Gleevec 400 mg
PCR 53%, 41%, 1.69%, 5.63% (Mutation test negative) September 2013
Sprycel 100 mg
PCR 1.1%, 0.2%, 0.2%, 0.6%, .09%, .06%, PCRU June 2015, PCRU Sept 2015, PCRU Dec 2015, 0.042% Mar 2016, 0.122% April 2016, 0.19% June 2016, 0.176% July 2016, .052% Sept 2016, .031% Nov 2016
Diagnosed Basel Skin Cancer December 2012, October 2014 (All cancer removed)
Diagnosed Melanoma April 2015 (All cancer removed)
#2
Posted 04 March 2015 - 07:23 PM
#3
Posted 05 March 2015 - 04:45 AM
https://www.youtube.com/watch?v=oVWjAeAa52o
#4
Posted 06 March 2015 - 12:40 AM
Thanks Phil - you must know this movie pretty well .
#5
Posted 06 March 2015 - 06:26 AM
It must be 30 years since I last saw it, but the instant Trey mentioned 'bleeding time' it was like it was yesterday!
#6
Posted 06 March 2015 - 04:40 PM
FISH 92%
BMB 9:22 translocation
1/19/15 began 400 mg gleevec
1/22/15 bcr 37.2 IS
2/6/15 bcr 12.5 IS
3/26/15 bcr 10.3 IS
6/29/15 bcr 7.5 IS
9/24/15 bcr 0.8 IS
1/4/16 bcr 0.3 IS
Started 100 mg dasatinib, mutation analysis negative
4/20/16 bcr 0.03 IS
8/8/16 bcr 0.007 IS
12/6/16 bcr 0.002 IS
Lowered dasatinib to 70 mg
4/10/17 bcr 0.001 IS
Lowered dasatinib to 50 mg
7/5/17 bcr 0.004 IS
8/10/17 bcr 0.001. Stopped TKI in prep for September surgery.
9/10/17 bcr 0.006
10/10/17 bcr 0.088
#7
Posted 06 March 2015 - 07:33 PM
https://www.youtube.com/watch?v=oVWjAeAa52o
You gotta love British humor. I love Doc Martin! Best show ever.
#8
Posted 06 March 2015 - 07:44 PM
See a resemblance?
Attached Files
Edited by Trey, 06 March 2015 - 07:46 PM.
#9
Posted 06 March 2015 - 08:40 PM
I agree with Marnie I love british humor, doc martin, mrs. browns sons, Michael Crawford had a comedy series years ago and it was hysterical, that was before cable and we had a rotor something antenna so we could pick up Canadian shows too. I miss those days.
#10
Posted 06 March 2015 - 08:41 PM
Well, bummer. I tried to photoshop Doc Martin's face (Martin Clunes) in, which would have been far better, but it's been so long since my Photoshop class, that I couldn't figure it out. Maybe next time. . .
#11
Posted 06 March 2015 - 08:45 PM
I gotta learn how to post a picture
#12
Posted 08 March 2015 - 07:59 AM
I was flipping through my amazon prime and came across Doc Martin and thought I should watch that series agin! Loved it!
Pat
"You can't change the direction of the wind but you can adjust your sails."
DX 12/08; Gleevec 400mg; liver toxicity; Sprycel 100mg.; CCyR 4/10; MMR 8/10; Pleural Effusion 2/12; Sprycel 50mg. Maintaining MMR; 2/15 PCRU; 8/16 drifting in and out of undetected like a wave meeting the shore. Retired 12/23/2016! 18 months of PCRU, most recent at Mayo on 7/25/17 was negative at their new sensitivity reporting of 0.003.<p>
#13
Posted 08 March 2015 - 10:17 AM
Love the video guys....I will definitely take all of this into consideration. For some strange reason since they updated this site a few months ago I cannot find some of the topics I posted a year ago. I guess they were lost with the update :-(
Gleevec 400 mg
PCR 53%, 41%, 1.69%, 5.63% (Mutation test negative) September 2013
Sprycel 100 mg
PCR 1.1%, 0.2%, 0.2%, 0.6%, .09%, .06%, PCRU June 2015, PCRU Sept 2015, PCRU Dec 2015, 0.042% Mar 2016, 0.122% April 2016, 0.19% June 2016, 0.176% July 2016, .052% Sept 2016, .031% Nov 2016
Diagnosed Basel Skin Cancer December 2012, October 2014 (All cancer removed)
Diagnosed Melanoma April 2015 (All cancer removed)
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