Hi all,
I found this group through another group and I was recently - Dec 11 - diagnosed with Chronic Myolegenous Lukemia (I believe that it is different than Chronic Myeloid Lukemia from the research I have done). When I was first told about this I was told by my doc to google it to find out what it was. While I appreciate the fact that he did not want to give me false information......it has been pure torture to understand what to expect - especially when the first appointment with the hematology clinic wasn't even scheduled at that point. Since this diagnosis, I have done much research and a few things have happened. One, I've been laid off and my doc put me on the EI sick benefits (which give me 15 weeks to get healthy enough to work again). Two, I ended up at the ER for 19 hours - at the same time being awake for 60,5 hours straight because of the pain in my left side. I have Fibromyalgia and IBS, and my IBS has gone severe so now I'm facing barium X-rays and testing to find out why and if it's more than just IBS - my brain wants to know if it's connected somehow with the lukemia. Because of my visit to the ER, they have finally moved my appointment from the end of April to next week - I am so thankful of this because finally the torture of a million questions and no answers may end. I am not sure if any of you can possibly give me a heads up of what to expect treatment wise.....or emotional wise........I have accepted the fact that I have cancer and that it's a cancer I was born with and not inherited from my father- who passed away this past July from terminal cancer. I just don't do good with unknowns......
Sorry for the long ramble....
RedZee