I used to laugh at co-workers who "only" worked an 8-hour day. HAH! Slackers! Then I developed CML. At first, I was determined to keep up my normal pace at work and at home. I couldn't do it - I was exhausted, and the other side effects were limiting my ability to function like I wanted to. I had to learn to pace myself. Now, I pretty much work the same hours that my co-workers do, except that I split my time between working remotely in the morning (to accommodate the "GI issues" (ahem), and then working on-site in the afternoon. Everyone has been very understanding. I don't sneer at anyone's hours anymore.
To retire or not?
#21
Posted 03 March 2015 - 08:32 PM
Dx: Sudden severe anemia detected 07/2011, followed by WBC spike. CML Dx 02/2012.
Rx: 03/2012-Gleevec400. Reduced 02/2013 to Gleevec300 due to side effects (low blood counts).
Response: PCR-Und within 7 mo. on G400. Maintained MMR4-MMR4.5 on G300. PCR-Und since 02/2016.
#22
Posted 04 March 2015 - 06:55 AM
10/01/2014 100% Diagnosis (WBC 278k, Blasts 6%, Spleen extended 20cm)
Cancer Sucks!
#23
Posted 05 March 2015 - 07:23 AM
Retirement? Or do you mean trying to preserve what energy you have to face another day of living? I was diagnosed at 50; now close to going on Medicare. When diagnosed, I was working full time and had a career. Things changed. Money (and boredom) are always dogging me now, so I work temp jobs (some limited but full time) when I can get them. Getting enough rest is important to my quality of life. Otherwise, I'm just working, coming home and plopping on the couch. No social life at all. I've learned there's no amount of money that compares to having the energy to face and enjoy the world, at least as best I can. Good luck in your decision.
#24
Posted 06 March 2015 - 04:56 PM
FISH 92%
BMB 9:22 translocation
1/19/15 began 400 mg gleevec
1/22/15 bcr 37.2 IS
2/6/15 bcr 12.5 IS
3/26/15 bcr 10.3 IS
6/29/15 bcr 7.5 IS
9/24/15 bcr 0.8 IS
1/4/16 bcr 0.3 IS
Started 100 mg dasatinib, mutation analysis negative
4/20/16 bcr 0.03 IS
8/8/16 bcr 0.007 IS
12/6/16 bcr 0.002 IS
Lowered dasatinib to 70 mg
4/10/17 bcr 0.001 IS
Lowered dasatinib to 50 mg
7/5/17 bcr 0.004 IS
8/10/17 bcr 0.001. Stopped TKI in prep for September surgery.
9/10/17 bcr 0.006
10/10/17 bcr 0.088
1 user(s) are reading this topic
0 members, 1 guests, 0 anonymous users