3 replies to this topic

[Kittywatkins]

Today was a hard day. I'm on sprycel 100mg again and I just can't take the total exhaustion. Now around 11am I get so tired that my body breaks down. Today my knees were so achy and I was short of breath most of the day. I've been cold all day as well. Ugh! Just venting

[Trey]

It can take time for the body to adjust to Sprycel.  Maybe you can work through this, but it could take a while. 

 

Also, 100mg is a lot of drug.  70mg may be a better dosage.  Ask the Onc.

[Billie Murawski]

Hi Kitty,

 I'm on a low dose of sprycel and I get so tired, I started out on 100mg and I remember the fatigue it got much better after a couple months, I take blood pressure meds now so I think that is my problem. It's really frustrating waiting for our bodies to adjust to these meds and in the long run it's well worth it. Like Trey said a lower dose may help and the oncs are much more willing to lower our doses than they were a few years ago.  Good Luck   Billie

[hannibellemo]

kitty,

 

I had the same side effects. They started after 45 days and lasted 3-4 months and one day I woke up and felt better. I really never looked back with those side effects.

 

After the pleural effusion at 2.5 years my dose was lowered to 50mg and I did just as well. It took a little longer to get back to MMR but it happened. 

 

Trey might be right, ask for dose reduction and watch your tests closely and see what happens. I remember how truly awful I felt and I would never want to feel that way again!