Hi all, my name is Heather. I was diagnosed in December with CML and started Sprycel 100mg. My question is have you noticed viruses and colds hitting you harder than they did before? I've been sick for the past month with a nasty virus that the rest of my family got over pretty quickly.
Sick more often?
#1
Posted 26 February 2015 - 11:42 AM
#2
Posted 26 February 2015 - 03:00 PM
FISH 92%
BMB 9:22 translocation
1/19/15 began 400 mg gleevec
1/22/15 bcr 37.2 IS
2/6/15 bcr 12.5 IS
3/26/15 bcr 10.3 IS
6/29/15 bcr 7.5 IS
9/24/15 bcr 0.8 IS
1/4/16 bcr 0.3 IS
Started 100 mg dasatinib, mutation analysis negative
4/20/16 bcr 0.03 IS
8/8/16 bcr 0.007 IS
12/6/16 bcr 0.002 IS
Lowered dasatinib to 70 mg
4/10/17 bcr 0.001 IS
Lowered dasatinib to 50 mg
7/5/17 bcr 0.004 IS
8/10/17 bcr 0.001. Stopped TKI in prep for September surgery.
9/10/17 bcr 0.006
10/10/17 bcr 0.088
#3
Posted 26 February 2015 - 04:57 PM
There have been some nasty viruses out there this year! If it lasts longer than a week you don't have a garden variety cold. I started getting sick on Feb. 4 and it is just this week I've started feeling like I might be getting better.
I lost my voice for well over a week and have been, as I mentioned in another post, just a little mucus producing machine. A lot of people have reported developing subsequent sinus infections and, even, pneumonia. Most reports are saying 4 weeks minimum for this virus.
I don't get colds and I'm very seldom sick, (evidently, I just get leukemia instead - ) so this threw me for a loop.
Pat
"You can't change the direction of the wind but you can adjust your sails."
DX 12/08; Gleevec 400mg; liver toxicity; Sprycel 100mg.; CCyR 4/10; MMR 8/10; Pleural Effusion 2/12; Sprycel 50mg. Maintaining MMR; 2/15 PCRU; 8/16 drifting in and out of undetected like a wave meeting the shore. Retired 12/23/2016! 18 months of PCRU, most recent at Mayo on 7/25/17 was negative at their new sensitivity reporting of 0.003.<p>
#4
Posted 26 February 2015 - 08:31 PM
It could be an issue very soon after starting TKI drugs as the leukemic white blood cells are killed off quickly and the normal WBCs have not ramped up yet. But within a couple months or so the immune system returns to fairly normal, and after a while there is no difference.
#5
Posted 26 February 2015 - 11:35 PM
I've been off a TKI for 15 months now, wound up having a couple of viruses involving vomiting since I've been off, never really had much of anything while on Gleevec. Sometimes it just depends on what is going around at the time.
Plus the stress of being diagnosed and starting a new drug impacts your immune system.
#6
Posted 27 February 2015 - 04:08 AM
True when I started Gleevac at dx I got sick 3 weeks after then again a couple months later, no problem now except when I'm around little kids.
#7
Posted 27 February 2015 - 04:19 PM
There have been some nasty viruses out there this year! If it lasts longer than a week you don't have a garden variety cold. I started getting sick on Feb. 4 and it is just this week I've started feeling like I might be getting better.
I lost my voice for well over a week and have been, as I mentioned in another post, just a little mucus producing machine. A lot of people have reported developing subsequent sinus infections and, even, pneumonia. Most reports are saying 4 weeks minimum for this virus.
I don't get colds and I'm very seldom sick, (evidently, I just get leukemia instead - ) so this threw me for a loop.
There have been some nasty viruses out there this year! If it lasts longer than a week you don't have a garden variety cold. I started getting sick on Feb. 4 and it is just this week I've started feeling like I might be getting better.
I lost my voice for well over a week and have been, as I mentioned in another post, just a little mucus producing machine. A lot of people have reported developing subsequent sinus infections and, even, pneumonia. Most reports are saying 4 weeks minimum for this virus.
I don't get colds and I'm very seldom sick, (evidently, I just get leukemia instead - ) so this threw me for a loop.
Saw my dr, said yes to sinus infection, now on antibiotics. I had influenza, likely the one the flu shot didn't cover this year
FISH 92%
BMB 9:22 translocation
1/19/15 began 400 mg gleevec
1/22/15 bcr 37.2 IS
2/6/15 bcr 12.5 IS
3/26/15 bcr 10.3 IS
6/29/15 bcr 7.5 IS
9/24/15 bcr 0.8 IS
1/4/16 bcr 0.3 IS
Started 100 mg dasatinib, mutation analysis negative
4/20/16 bcr 0.03 IS
8/8/16 bcr 0.007 IS
12/6/16 bcr 0.002 IS
Lowered dasatinib to 70 mg
4/10/17 bcr 0.001 IS
Lowered dasatinib to 50 mg
7/5/17 bcr 0.004 IS
8/10/17 bcr 0.001. Stopped TKI in prep for September surgery.
9/10/17 bcr 0.006
10/10/17 bcr 0.088
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