I'm wondering how many of us have had their vitamin D level's checked prior to or shortly after diagnosis and what the levels were?
I am asking because I am thinking that low vitamin D may have created an environment conducive to CML expansion and subsequent disease. It would be interesting if there are individuals on this forum who had high vitamin D levels (> 70ng/ml) at diagnosis or low vitamin D level.
In my case - I had very low vitamin D and didn't know it because I never tested for it and avoided the sun (with sun block), did not eat dairy that was vitamin D fortified. My vitamin D was 17 when I had a long overdue physical two years ago and they tested for vitamin D.
It is now over 70, brought up by taking vitamin D3 supplements (5000 - 10,000 IU's per day). PCRU correlates to when I started taking much more vitamin D3 to get my level up to 70 (I am aiming for 80).
I am just wondering if we CML people - enabled CML to get started because we were vitamin D deficient.
I am hoping that now that my CML is PCRU, that my Curcumin, vitamin D taking will keep it there without having to take Sprycel.
It's just a hunch ...