Conducting a survey. How many BMB have you had per year? And the commulative total since diagnosis?
It's that time again--the quarterly appointment with my onc. It's been not quite 14 months and I've had two BMBs and he wants to do a third. I was able to postpone it last quarter but he think's it's the only way to tell if I reach CML remission. I probably wouldn't mind so much if I didn't already have back issues. Personally as long as the BCR-ABL numbers continue to come down, I don't think it's necessary.
Bonus question does any one else have almost unbearable back pain when on feet for more than a few hours? Familiar with the bone pain as side effects but seems like it would show up other places as well.
I don't know if the back issues are preexisting from a herniated disk and bulging disks (last MRI over a year ago said they were resolving), other hereditary, Sprycel bone pain, or from BMB. If my back gets any worse, it's going to be a quantity of life vs quality. Between my back issues and certain female issues I'll spare you, CML seems minor in comparison.