Posted 22 February 2015 - 07:20 PM
I'm super interested in this topic, but I can't help but feel that I'm not quite going to get to the point where I can even try this.
I've been MR4 (<0.01) for 17 months straight now (since June 2013), I hit this level at 9 months into treatment (March 2012), then at the 15 month mark (Oct 2012), I had a little blip where I went up to at its highest 0.041, and hung around this level for about 7 months then it dropped back down again and has been that way ever since.
My latest test has showed a level of 0.013. Currently, I'm not really too concerned. After all, I've been here before, so hopefully it will go back down again at the next test.
What I'm wondering is...why?
Am I just one of those people who is super sensitive to change? Can't quite hold onto the drug levels? I did have a levels test done and I was way under the threshold for Gleeve drug levels. I have been unwell again for the last four months with nerve problems in my neck and shoulders, and my stomach has not recovered yet from 2 gastro illness I had back in Oct/Nov last year - so my guess is, that maybe it's this. This is what was happening last time I had a breakthrough.
Does the clock to stopping time start again once you break that magical barrier? How do I get to deeply PCRU, like you are saying Trey? Will it just take me a lot longer? I'm obviously just hanging on to my levels at the moment.
So many questions...
Diagnosed 9 June 2011, Glivec 400mg June 2011-July 2017, Tasigna 600mg July 2017-present (switched due to intolerable side effects, and desire for future cessation attempt).
Commenced monthly testing when MR4.0 lost during 2012.
2017: <0.01, <0.01, 0.005 (200mg Glivec, Adelaide) <0.01, 0.001 (new test sensitivity)
2016: <0.01, <0.01, PCRU, 0.002 (Adelaide)
2015: <0.01, <0.01, <0.01, 0.013
2014: PCRU, <0.01, <0.01, <0.01, <0.01
2013: 0.01, 0.014, 0.016, 0.026, 0.041, <0.01, <0.01
2012: <0.01, <0.01, 0.013, 0.032, 0.021
2011: 38.00, 12.00, 0.14