Advanced Member
Posted 18 February 2015 - 04:55 PM
food items to share
by "nature's bakery" sold at Costco
stone ground whole wheat Fig Bars, racked with the granola bars
blueberry, strawberry, lemon - 30 two-packs to the box
just picked up 2 more boxes
developed a pack a day habit
Coming soon: Pomegranate Fig Bar
For the benefit of yourself and others please add your CML history into your Signature
02/2010 Gleevec 400mg
2011 Two weakly positives, PCRU, weakly positive
2012 PCRU, PCRU, PCRU, PCRU
2013 PCRU, PCRU, PCRU, weakly positive
2014 PCRU, PCRU, PCRU, PCRU (12/07 began dose reduction w/each continuing PCRU)
2015 300, 250, 200, 150
2016 100, 50/100, 100, 10/17 TFR
2017 01/17 TFR, 04/18 TFR, 07/18 TFR 0.0012, 08/29 TFR 0.001, 10/17 TFR 0.000
2018 01/16 TFR 0.0004 ... next quarterly PCR 04/17
At the earliest opportunity, and whenever possible, lower your TKI dosage; TKIs are toxic drugs and the less we take longterm the better off we are going to be ... this is especially true for older adults.
In hindsight I should have started my dosage reduction two years earlier; it might have helped minimize some of the longterm cumulative toxic effects of TKIs that I am beset with.
longterm side-effects Peripheral Artery Disease - legs (it's a bitch); continuing shoulder problems, right elbow inflammation. GFR and creatinine vastly improved after stopping Gleevec.
Cumulative Gleevec dosage estimated at 830 grams
Taking Gleevec 400mg an hour after my largest meal of the day helped eliminate the nausea that Gleevec is notorious for.
Trey's CML Blog - Stopping - The Odds - Stop Studies - Discussion Forum Cessation Study
Big PhRMA - Medicare Status - Social Security Status - Deficit/Debt
Advanced Member
Posted 19 February 2015 - 01:17 AM
Gail, The next time we go in maybe we can be roomates! If someone told me I'd have a baby, I'd spend a lifetime there and I wouldn't be able to spend all the money I would make from the scandal sheets. I haven't read 50 shades of grey, I'm waiting for 60 something shades of white!
Advanced Member
Posted 19 February 2015 - 02:48 AM
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