Posted 05 February 2015 - 07:21 PM
I was on Gleevec 3 years and now I am on Tasigna. Wow what a difference, My puffy eyes have gone down, no swelling in my ankles, I can feel my ankle bones... And least but not least I am having a normal bowel movement. Three years of diarrhea kept me close to home. My joints aren't even hurting.
I feel so much better in just 10 days. I see my onco doctor Friday the 13th. I have had 2 normal EKG and routine blood work. My PCR went up to 8% on Gleevec. I will probably get that checked in a couple of months.
I am so thankful for this site, you all keep us informed.
1 2012 CML detected Started Gleevec 400 mg
In nov 2014 my pcr started to rise by Feb I stopped Gleevec and went onto
2 2015 Tasigna 600 mg/day
I have been PCRU for 2 years and stopped Tasigna 4 7 2017
5 8 2017 results 0.008
5 30 2017 results 0.028
6 30 2017 results 0.3, I have restarted the Tasigna because it went above 0.1
11 2011 CML detected Started Gleevec 400 mg
He went 2 1/2 years on gleevec and lost PCRU
Started Sprycel went PCRU for 2 years and stopped the Sprycel, went back for 3 month checkup and PCR was 8.0
He went back onto Sprycel and now is PCRU again
3 16 2017 results 0.008
6 1 2017 results 0.002