Lisa, I agree with Trey and mlk, if it were me I wouldn't take a break so soon I think the first three days were the worst for me.
The headaches are REAL
Started by
Jamie2015
, Feb 03 2015 01:40 PM
25 replies to this topic
#21
Billie Murawski
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Posted 18 March 2015 - 10:50 PM
#22
Marnie
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Posted 19 March 2015 - 06:18 AM
My Sprycel headaches lasted about 2 weeks, though I started at half dose (at my request). Hang in there.
Marnie
#23
Lisa Lisa
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Posted 19 March 2015 - 03:03 PM
Trey,
I spoke to a potential new dr at Sloan Kettering today. ( I think he is a keeper). He said same exact as you, on every point. Did not agree w my original onc hemotologist telling me to stop. My orig Dr told me migraine like hesdaches are not common Sloan onc said headaches can be brutal, similar to migraines - just be tough and tell them " bring it". I will restart tonight and do just that. Thanks.
It looks as if I will be switching doctors.
I spoke to a potential new dr at Sloan Kettering today. ( I think he is a keeper). He said same exact as you, on every point. Did not agree w my original onc hemotologist telling me to stop. My orig Dr told me migraine like hesdaches are not common Sloan onc said headaches can be brutal, similar to migraines - just be tough and tell them " bring it". I will restart tonight and do just that. Thanks.
It looks as if I will be switching doctors.
Dx 2/2015 BCR-ABL1 (p210) 85.2% (IS) 3/15
22% 5/15 0.13% 6/15 PCRU attained 9/15
Initial dose Sprycel 100 mg 3/15 Lowered 80 mg 5/15 Lowered 50 mg 1/16
Note: dose lowered bc of side effects - not bc onc wanted to reduce dosage
Sprycel: Currently 50 mg per day - taken 10 pm
#24
Lisa Lisa
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Posted 19 March 2015 - 03:11 PM
MLK did you have SEVERE headaches? This was by far the worst pain of my life.
Mlk, Billie, Trey, Marnie,
Thanks for the input. I will resume after dinner tonight. I believe in you all!
Mlk, Billie, Trey, Marnie,
Thanks for the input. I will resume after dinner tonight. I believe in you all!
Dx 2/2015 BCR-ABL1 (p210) 85.2% (IS) 3/15
22% 5/15 0.13% 6/15 PCRU attained 9/15
Initial dose Sprycel 100 mg 3/15 Lowered 80 mg 5/15 Lowered 50 mg 1/16
Note: dose lowered bc of side effects - not bc onc wanted to reduce dosage
Sprycel: Currently 50 mg per day - taken 10 pm
#25
Trey
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Posted 19 March 2015 - 03:11 PM
L&L,
Good for you. Taking control over your own therapy is a wise decision. You will get through it. Ask the family to bear with it, too.
#26
Marnie
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Posted 19 March 2015 - 07:14 PM
I think you will find that one day in the next week or so, you will realize that your head is not pounding. . .and then you will wonder when it stopped. . .and you will realize that you didn't even notice that the headaches were gone. And you'll wonder how the heck you didn't even notice. . .
At least that's what happened to me.
Good luck,
Marnie
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