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For me, the price of Gleevec went up again

Started by Widgeonus , Jan 12 2015 08:00 AM

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47 replies to this topic

#41 Buzzm1

Advanced Member

Members
972 posts

LocationSilicon Valley

Posted 04 June 2015 - 05:34 PM

chriskuo,

I'll continue to rail against Novartis continuing to increase the price of Gleevec twice a year, and absolutely nothing that you say will have any bearing on anything I have to say.

The repricing of a 14 year old drug is not a matter of what you, or Novartis, think the value of a life is. It's pure greed.

We all pay the price for Novartis's continuing greed in increased U.S. healthcare costs. Your argument that almost nobody is paying the full cost for the drug is total bullshit.

Novartis Gleevec

$30K/yr. 2001 intro

$47K/yr. 10/2009

$120K/yr. 02/2015

there's still time for another increase in price before Gleevec goes Generic in the U.S. 02/2016 at 30% retail?

For the benefit of yourself and others please add your CML history into your Signature

02/2010 Gleevec 400mg

2011 Two weakly positives, PCRU, weakly positive

2012 PCRU, PCRU, PCRU, PCRU

2013 PCRU, PCRU, PCRU, weakly positive

2014 PCRU, PCRU, PCRU, PCRU (12/07 began dose reduction w/each continuing PCRU)

2015 300, 250, 200, 150

2016 100, 50/100, 100, 10/17 TFR

2017 01/17 TFR, 04/18 TFR, 07/18 TFR 0.0012, 08/29 TFR 0.001, 10/17 TFR 0.000

2018 01/16 TFR 0.0004 ... next quarterly PCR 04/17

At the earliest opportunity, and whenever possible, lower your TKI dosage; TKIs are toxic drugs and the less we take longterm the better off we are going to be ... this is especially true for older adults.

In hindsight I should have started my dosage reduction two years earlier; it might have helped minimize some of the longterm cumulative toxic effects of TKIs that I am beset with.

longterm side-effects Peripheral Artery Disease - legs (it's a bitch); continuing shoulder problems, right elbow inflammation. GFR and creatinine vastly improved after stopping Gleevec.

Cumulative Gleevec dosage estimated at 830 grams

Taking Gleevec 400mg an hour after my largest meal of the day helped eliminate the nausea that Gleevec is notorious for.

Trey's CML Blog - Stopping - The Odds - Stop Studies - Discussion Forum Cessation Study

Big PhRMA - Medicare Status - Social Security Status - Deficit/Debt

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#42 rcase13

Advanced Member

Members
523 posts

LocationCharlotte, NC

Posted 04 June 2015 - 09:50 PM

I hate cancer...

10/01/2014 100% Diagnosis (WBC 278k, Blasts 6%, Spleen extended 20cm)

01/02/2015 0.06% Tasigna 600mg

04/08/2015 0.01% Tasigna 600mg

07/01/2015 0.01% Tasigna 600mg

10/05/2015 0.02% Tasigna 600mg

01/04/2016 0.01% Tasigna 600mg

04/04/2016 PCRU Tasigna 600mg

07/18/2016 PCRU Tasigna 600mg

10/12/2016 PCRU Tasigna 600mg

01/09/2017 PCRU Tasigna 600mg

04/12/2017 PCRU Tasigna 600mg

10/16/2017 PCRU Tasigna 600mg

01/15/2018 PCRU Tasigna 600mg

Cancer Sucks!

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#43 Buzzm1

Advanced Member

Members
972 posts

LocationSilicon Valley

Posted 04 August 2015 - 12:43 PM

chriskuo,

I'll continue to rail against Novartis continuing to increase the price of Gleevec twice a year, and absolutely nothing that you say will have any bearing on anything I have to say.

The repricing of a 14 year old drug is not a matter of what you, or Novartis, think the value of a life is. It's pure greed.

We all pay the price for Novartis's continuing greed in increased U.S. healthcare costs. Your argument that almost nobody is paying the full cost for the drug is total bullshit.

Novartis Gleevec

$30K/yr. 2001 intro

$47K/yr. 10/2009

$120K/yr. 02/2015

there's still time for another increase in price before Gleevec goes Generic in the U.S. 02/2016 at 30% retail?

PRICE CHECK:

Squeezing every last drop of blood out of the American consumer, prior to it going generic on Feb. 1, 2016, Novartis has again increased the U.S. price of Gleevec 30-day 400mg Rx, to $10,846.90

Novartis Gleevec

$30K/yr. 2001 intro

$47K/yr. 10/2009

$120K/yr. 02/2015

$132K/yr. 08/2015

For the benefit of yourself and others please add your CML history into your Signature

02/2010 Gleevec 400mg

2011 Two weakly positives, PCRU, weakly positive

2012 PCRU, PCRU, PCRU, PCRU

2013 PCRU, PCRU, PCRU, weakly positive

2014 PCRU, PCRU, PCRU, PCRU (12/07 began dose reduction w/each continuing PCRU)

2015 300, 250, 200, 150

2016 100, 50/100, 100, 10/17 TFR

2017 01/17 TFR, 04/18 TFR, 07/18 TFR 0.0012, 08/29 TFR 0.001, 10/17 TFR 0.000

2018 01/16 TFR 0.0004 ... next quarterly PCR 04/17

At the earliest opportunity, and whenever possible, lower your TKI dosage; TKIs are toxic drugs and the less we take longterm the better off we are going to be ... this is especially true for older adults.

In hindsight I should have started my dosage reduction two years earlier; it might have helped minimize some of the longterm cumulative toxic effects of TKIs that I am beset with.

longterm side-effects Peripheral Artery Disease - legs (it's a bitch); continuing shoulder problems, right elbow inflammation. GFR and creatinine vastly improved after stopping Gleevec.

Cumulative Gleevec dosage estimated at 830 grams

Taking Gleevec 400mg an hour after my largest meal of the day helped eliminate the nausea that Gleevec is notorious for.

Trey's CML Blog - Stopping - The Odds - Stop Studies - Discussion Forum Cessation Study

Big PhRMA - Medicare Status - Social Security Status - Deficit/Debt

Back to top

#44 Frogiegirl

Advanced Member

Members
259 posts

Posted 04 August 2015 - 12:49 PM

Makes me sick to my stomach. ....

Diagnosed Oct 2013 Started 600mg of Tasigna on Nov 4th. Lowered dose a few months later to 300mg due to side affects stayed here declining PCR until March 2015 small jump from 0.0072 to 0.0083 scarred my doc into full dose of Tasigna again 600mg(been miserable since) but reached PCRU 06/15/2015(next test) and have been there ever since. Hoping to have another little one. I have the support of my doc to go off anytime, just scared to jump. might go two years PCRU but he said it wont make much of a difference. I just figured I could possibly go into a trial while preggers if I got the two years behind me.

Nov 8th 2017 went off Tasigna

Dec 1st PCRU off TKI

Jan 5th PCR Detected .0625

Feb 1st PCR Detected .7815

Added 8-6 grams Curcumin daily in Feb

March 3rd PCR Detected 3.2646 YIKES!

stopped trying for baby after February reading. will start new TKI march 16th 2017 (Sprycel)

FYI I'm not done trying for my last little one.

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#45 rcase13

Advanced Member

Members
523 posts

LocationCharlotte, NC

Posted 04 August 2015 - 02:49 PM

Am I right that this only affects those of us that live in states that don't have parity laws?

10/01/2014 100% Diagnosis (WBC 278k, Blasts 6%, Spleen extended 20cm)

01/02/2015 0.06% Tasigna 600mg

04/08/2015 0.01% Tasigna 600mg

07/01/2015 0.01% Tasigna 600mg

10/05/2015 0.02% Tasigna 600mg

01/04/2016 0.01% Tasigna 600mg

04/04/2016 PCRU Tasigna 600mg

07/18/2016 PCRU Tasigna 600mg

10/12/2016 PCRU Tasigna 600mg

01/09/2017 PCRU Tasigna 600mg

04/12/2017 PCRU Tasigna 600mg

10/16/2017 PCRU Tasigna 600mg

01/15/2018 PCRU Tasigna 600mg

Cancer Sucks!

Back to top

#46 Buzzm1

Advanced Member

Members
972 posts

LocationSilicon Valley

Posted 04 August 2015 - 03:11 PM

Am I right that this only affects those of us that live in states that don't have parity laws?

parity laws "merely shift the responsibility" for the cost of the drugs to insurers, who in turn will inevitably pass the additional costs on to all policy holders.

there is no free lunch

For the benefit of yourself and others please add your CML history into your Signature

02/2010 Gleevec 400mg

2011 Two weakly positives, PCRU, weakly positive

2012 PCRU, PCRU, PCRU, PCRU

2013 PCRU, PCRU, PCRU, weakly positive

2014 PCRU, PCRU, PCRU, PCRU (12/07 began dose reduction w/each continuing PCRU)

2015 300, 250, 200, 150

2016 100, 50/100, 100, 10/17 TFR

2017 01/17 TFR, 04/18 TFR, 07/18 TFR 0.0012, 08/29 TFR 0.001, 10/17 TFR 0.000

2018 01/16 TFR 0.0004 ... next quarterly PCR 04/17

At the earliest opportunity, and whenever possible, lower your TKI dosage; TKIs are toxic drugs and the less we take longterm the better off we are going to be ... this is especially true for older adults.

In hindsight I should have started my dosage reduction two years earlier; it might have helped minimize some of the longterm cumulative toxic effects of TKIs that I am beset with.

longterm side-effects Peripheral Artery Disease - legs (it's a bitch); continuing shoulder problems, right elbow inflammation. GFR and creatinine vastly improved after stopping Gleevec.

Cumulative Gleevec dosage estimated at 830 grams

Taking Gleevec 400mg an hour after my largest meal of the day helped eliminate the nausea that Gleevec is notorious for.

Trey's CML Blog - Stopping - The Odds - Stop Studies - Discussion Forum Cessation Study

Big PhRMA - Medicare Status - Social Security Status - Deficit/Debt

Back to top

#47 rcase13

Advanced Member

Members
523 posts

LocationCharlotte, NC

Posted 04 August 2015 - 05:31 PM

Well a happy medium will have to be found because we can't just bankrupt everyone that gets cancer and requires these drugs. We all end up paying for bankruptcies as well.

10/01/2014 100% Diagnosis (WBC 278k, Blasts 6%, Spleen extended 20cm)

01/02/2015 0.06% Tasigna 600mg

04/08/2015 0.01% Tasigna 600mg

07/01/2015 0.01% Tasigna 600mg

10/05/2015 0.02% Tasigna 600mg

01/04/2016 0.01% Tasigna 600mg

04/04/2016 PCRU Tasigna 600mg

07/18/2016 PCRU Tasigna 600mg

10/12/2016 PCRU Tasigna 600mg

01/09/2017 PCRU Tasigna 600mg

04/12/2017 PCRU Tasigna 600mg

10/16/2017 PCRU Tasigna 600mg

01/15/2018 PCRU Tasigna 600mg

Cancer Sucks!

Back to top

#48 chriskuo

Advanced Member

Members
367 posts

Posted 05 August 2015 - 01:25 AM

The donut hole for Medicare Part D is being eliminated over the next 5 years, insurers cannot deny based on preexisting conditions, and drug makers have been providing drugs at a low cost to lower-income people. Changes are occurring slowly that just keeps pushing out the doomsday scenarios a little further at a time.