My wife was diagnosed with CML around first week of Aug'14. The WBC count was at 165K..... The BCR-ABL transcript was detected to be 40.612%. The dr started her on Sprycel 100 mg (7 days) which has now been reduced to 70 mg as her CBC has constantly remained low - WBC continues to hover around 3K.
This week she went through another BCR-ABL test and the transcript was detected to be 0.138%. Now should we be excited and jumping up and down or should we be concerned that it has still not reached 0.001%. Personally, I feel this is a good progress made but my wife feels frustrated as she was really hoping that she would have gotten into remission (if there is such a thing in CML) by now...... So, we are really not sure on how to react. The dr thinks this is good progress and will discuss more when we meet him next week.
I would like get other people's experience on how it progresses normally.....