The indomitable human spirit and courage exhibited by many of us despite great travail is truly amazing. It is an honor to belong to such a group.
May each of us have a very Blessed Christmas and a healthy and Happy New Year! Frank
Merry Christmas
Started by
Sneezy12
, Dec 24 2014 05:19 AM
11 replies to this topic
#2
hannibellemo
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Posted 24 December 2014 - 09:32 AM
Thank you, Frank! Same to you and your loved ones!
Pat
"You can't change the direction of the wind but you can adjust your sails."
DX 12/08; Gleevec 400mg; liver toxicity; Sprycel 100mg.; CCyR 4/10; MMR 8/10; Pleural Effusion 2/12; Sprycel 50mg. Maintaining MMR; 2/15 PCRU; 8/16 drifting in and out of undetected like a wave meeting the shore. Retired 12/23/2016! 18 months of PCRU, most recent at Mayo on 7/25/17 was negative at their new sensitivity reporting of 0.003.<p>
#3
Trey
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Posted 24 December 2014 - 10:21 AM
https://www.youtube.com/watch?v=pn10FF-FQfs
#4
SandyG353
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Posted 24 December 2014 - 01:20 PM
I wish everyone a Very Merry Christmas and a Very Happy New Year. I hope that the new year brings great happiness to everyone and good health. May everyone reach his/her goal regarding CML.
Sandy
#5
Antilogical
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Posted 24 December 2014 - 08:15 PM
Merry Christmas, and Season's Greetings to all!
Dx: Sudden severe anemia detected 07/2011, followed by WBC spike. CML Dx 02/2012.
Rx: 03/2012-Gleevec400. Reduced 02/2013 to Gleevec300 due to side effects (low blood counts).
Response: PCR-Und within 7 mo. on G400. Maintained MMR4-MMR4.5 on G300. PCR-Und since 02/2016.
#6
acl
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Posted 25 December 2014 - 01:06 PM
Hi Everyone,
Merry Christmas and Happy New Year to all!
Diagnosed March 2014
Imatinib 400 mg. Summer 2014, Imatinib 300 mg.
% BCR-ABL
IS-NCN
06/01/16 0.18%
24/02/16 0.11%
23/03/16 0.13%
12/05/16 0.07%
13/07/16 0.17%
12/09/16 0.12%
21/19/16 0.15%
23/11/16 0.09%
20/12/16 0.11%
19/01/17 0.07%
21/02/17 0.07%
20/03/17 0.06%
20/04/17 0.06%
20/05/17 0.07%
20/06/17 0.06%
23/08/17 0.08%
22/12/17 0.04%
#7
PhilB
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Posted 25 December 2014 - 05:52 PM
Happy Hogswatch one and all.
#8
JPD
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Posted 25 December 2014 - 06:35 PM
Merry Christmas. I got a .5% PCR (14 months) which is down from 1.0 last time. So I am full of good tidings. Shouldnt have celebrated with so much beer last night, but *oh well*
January 15: .53%
April 15: .78%
July 15: 1.1% - upped dosage to 400mg after this test
Oct 15: .85%
December 15: .28%
March 16: .29%
July 16: .34%
October 16: .11%
January 17: .081%
April 17: .055%
July 17: .135%
Oct 17: .008%
#9
acl
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Posted 25 December 2014 - 07:48 PM
JPD congratulations!
Diagnosed March 2014
Imatinib 400 mg. Summer 2014, Imatinib 300 mg.
% BCR-ABL
IS-NCN
06/01/16 0.18%
24/02/16 0.11%
23/03/16 0.13%
12/05/16 0.07%
13/07/16 0.17%
12/09/16 0.12%
21/19/16 0.15%
23/11/16 0.09%
20/12/16 0.11%
19/01/17 0.07%
21/02/17 0.07%
20/03/17 0.06%
20/04/17 0.06%
20/05/17 0.07%
20/06/17 0.06%
23/08/17 0.08%
22/12/17 0.04%
#10
mlk210
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Posted 25 December 2014 - 08:26 PM
Happy Holidays to all of you! Congratulations JPD!!
7/2014 Diagnosed,8/14 Started 100mg Sprycel, 9/14 Thyroidectomy (thyroid cancer)
8/2015 Undetectable, 12/15 Plural Effusion (3 wk drug break)
1/2016 Started 70mg Sprycel, 3/16 Plural Effusion (4 wk drug break)
3/16 .014 after a wk w/o meds
4/16 Started 400mg Gleevec
4/16 Undetectable, 7/16 Undetectable, 10/16 Undetectable, 2/17 Undetectable, 5/17 Undetectable, 8/17 Undetectable
#11
Cathy
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Posted 26 December 2014 - 02:09 PM
Merry Christmas and Happy New year to Everyone!
Wishing everyone a healthy 2015,
Cathy
Cathy
DX 5-2010 Started normal hydra then Gleevec for 9 months stopped working
Tasigna after 5 pills pancreatis numbers jumped up quickly
Started Sprycel 100, 8-2010 for a 3 years went down to 50 mg numbers at one point really jumped up quickly
currently on 70 mg for last 2-3 years trying to get onc to reduce dose Numbers never stabilize never MMR till 4-2017 bearly and jump up and down in and out of MMR stayed MMR for 3 months then
After 6 years on sprycel fluid on both lungs, drained still have some fluid on lungs, and currently off drug 4 months now
numbers lower then ever go figure I've never been this low of a number
last 2 tests .0686 and .0181 !!
#12
pammartin
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Posted 28 December 2014 - 11:52 PM
It was a busy one, don't think we sat down except to fall into bed before jumping out and doing it again. I hope everyone had a peaceful holiday with family and friends
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