Hi all my dear friends,
Finally lls got me back online, thank you lls I sure hope I can figure all this new stuff out. Maybe Santa will come and fill my brain with knowledge about computers (yeah right)! These last two years have been pretty rough, I actually miss the time when all I had to worry about was my cml!
Ron almost collapsed at the dr. office on dec 1, doc called ambulance and he was in icu for 15 days,we were in er for almost 13 hours, they couldn't get him stabilized, basically they didn't think he was going to make it. They finally got him in icu his lungs were full of fluid, which was causing blood clots, which were making his heart work overtime 180 beats a minute he had a pulmonary embolism 2 heart valves were leaking and his heart was only working at 30% capacity. All the docs kept saying to me that my husband is a very sick man. No s@#$%t for 2 years they kept telling us he had polycythemia which was under control and he was depressed. So I spent 2 weeks with my sister, she only lives 5 minutes from the hospital. I had doctors calling me all the time, that was scary, doctors don;t call you they play golf! I knew he would make it, nobody else thought so but I know my husband and that was what kept me going.
He was transfered to a rehab facility dec. 15, he was still in bad shape but you know how it is INSURANCE RULES. But day by day he is getting a little bit better. He has to learn everything all over, I don't know why he couldn,t walk or talk normally, I still haven't talked to all his doctors, and the nurses at rehab have been so busy they don't have his chart handy, I don't bug them yet because the care and rehab he is getting is wonderful. All his doctors are off on vacation so I really won't get any answers until the holidays are over. In all honesty I am so relieved he is finally getting help he had so many tests over the last 2 years and nothing showed up, he just had a cat scan of his chest in August, bw every month, it all was fine, so I can't blame anybody. He's still not out of the woods, but at least he's getting good care.
Thanks for letting me vent. I just hope he is the same man he was before, I'll still love him and take care of him the way he has done for me this last 7 years. I mean give the man credit when I first went on Gleevac all I did was throw up and he cleaned up after me, and all the other stuff that goes along with the big G!,or should I say the big D!
Merry Christmas Everybody (may Santa bring you all a large box of Immodium AD.