I was diagnosed in 2003. Took 400 mg gleevec until 2011 and then reduced to 200 mg. This October -- after 11+ years on gleevec -- I developed pericarditis that then went to pericardial effusion. I had heart surgery late October to drain the fluid. I'm told by my cardiology team that the likely culprit is gleevec -- and it's been confirmed by my oncologist that gleevec as well as sprycel and tasigna have pericarditis as a side effect. I had never heard this before from him -- and I've not read the side effect list that comes with my medication in a very long time.
I'm wondering if anyone else has developed pericarditis.
I am off gleevec now -- have been for 2 months. I'm seeing a specialist at Dana Farber next week. For now, I feel fine.
Thanks for any input.
all the best,