New here, although not with a new CML diagnosis. I've been on Tasigna since my initial DX.
I am very concerned with my progress. It is my understanding that if one is < 1% on the International Scale, a complete cytogenetic response (CCyR) had been achieved. Is this correct?
Regardless of that, my PCR results seem to indicate that I am levelling off as far as response to the medication I am currently taking. I've included my results below:
February 2013 - Initial DX
This is troubling to me. I feel as though I am far behind the curve as I see people reaching MMR, or even CMR, within a year of using their prescribed TKI, and quite honestly, it is scaring the crap out of me. I am seeing my oncologist this Wednesday for more blood work.
Is this truly concerning or am I blowing this out of proportion?
On an aside, when I was diagnosed, and probably for a good year after, I was generally okay with it - the diagnosis, the medication, etc. However, over time, I feel like it's consuming my thoughts more and more - and brutally so during the days before an appointment, to the point where I really start thinking I need to speak with a psychiatrist or something... sometimes I'm just at a complete loss.
Glad I did finally create an account here tho - been reading the forums for quite a while now.