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#1 Sneezy12

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Posted 15 December 2014 - 05:28 AM

Whatever happened to Billie?
I enjoyed her humour!
Frank

#2 hannibellemo

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Posted 15 December 2014 - 07:57 AM

I agree! I believe that Marnie recently said she and her husband are going through a rough patch, I assume with his illness. I don't know if she has even signed on to this new version of our discussion board yet.

 

Pat


Pat

 

"You can't change the direction of the wind but you can adjust your sails."

DX 12/08; Gleevec 400mg; liver toxicity; Sprycel 100mg.; CCyR 4/10; MMR 8/10; Pleural Effusion 2/12; Sprycel 50mg. Maintaining MMR; 2/15 PCRU; 8/16 drifting in and out of undetected like a wave meeting the shore. Retired 12/23/2016! 18 months of PCRU, most recent at Mayo on 7/25/17 was negative at their new sensitivity reporting of 0.003.<p>


#3 pammartin

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Posted 15 December 2014 - 08:54 AM

I have had a few emails from Billie, she is hanging on like the rest of us.  As Marnie noted, it has been a rough summer. 



#4 Marnie

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Posted 15 December 2014 - 06:53 PM

Billie is checking in on the forum every once in awhile, but still has trouble logging in.  Right now, she could use some positive thoughts and well wishes.  I heard from her early this morning.  I'll let her know you are thinking of her.  Send good vibes (or prayers, or whatever works for you).

 

Marnie



#5 pammartin

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Posted 15 December 2014 - 07:17 PM

Thanks for the update Marnie!  Billie is an awesome person, I miss her stories and her presence. 



#6 Pin

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Posted 20 December 2014 - 04:49 AM

I miss her too :( I wish her lots of positive thoughts xx

Diagnosed 9 June 2011, Glivec 400mg June 2011-July 2017, Tasigna 600mg July 2017-present (switched due to intolerable side effects, and desire for future cessation attempt).

Commenced monthly testing when MR4.0 lost during 2012.

 

2017: <0.01, <0.01, 0.005 (200mg Glivec, Adelaide) <0.01, 0.001 (new test sensitivity)

2016: <0.01, <0.01, PCRU, 0.002 (Adelaide)

2015: <0.01, <0.01, <0.01, 0.013

2014: PCRU, <0.01, <0.01, <0.01, <0.01

2013: 0.01, 0.014, 0.016, 0.026, 0.041, <0.01, <0.01 

2012: <0.01, <0.01, 0.013, 0.032, 0.021

2011: 38.00, 12.00, 0.14





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