Hi, after 4 1/2 years you would think my numbers would be more stable they've been going up or the past three test. 6 weeks ago they were .4962 the new ones are .5982 almost .6! So needless to say getting up this high I'm starting to panic. I know they are just jumping around but they haven't been this high in a couple years. I've never reached MMR yet.
So they were going to send me to Cleveland Clinic but we are going to do a mutation and bone marrow test first and see what is shows. I had my sprycel increased to 70 mg a year ago because numbers were going up.
What is wrong with just going along and being boring.
Has anyone numbers been this high and no big deal after being on TKI for a couple years ?
Thank you ,