As you are aware, my wife has been newly diagnosed with CML and was on Sprycel 100 mg (basically 2 50 mg pills at night). Last month, her Onc reduced it to 100 mgs MWF (3 days) and 50 mgs for other fours days of the week. He plans to bring it down to 70 mgs 7 days a week as soon as the current stock get's over.
Now.... here is the concern..... For the last 3 weeks, she has been having lot of pain in her right thigh bone. To the point that she is not able to sleep on her right side and needs to be massaged. Some days she has trouble walking.... She was able to narrow it down to the bone (and not the muscle). That has me worried.
Secondly, she has been extremely lethargic and complete loss of energy. Last time when we talked to her onc, he was not worried and feels that it should get better - that was almost 1.5 months ago. Her WBC had also crashed to nearly 1.3. But her feeling extremely tired has not gotten better. We are really hoping that this not something that she will have to cope for long-term. She is not sure and I am hopeful.
This month, she is supposed to get her ABR-BCL test done - which will happen next week. Should we wait till we get the report or go in to meet the doctor as it has been 1.5 months since last visit.
Any help would be highly appreciated.