I've tried all the "eye puffiness" remedies, now on Preparation H. And I took a sinus allergy pill (just regular OTC), and that has worked the best so far, but hate to take every day.
Any miracle cures for periorbital edema
Started by
jmoorhou
, Nov 12 2014 11:38 PM
8 replies to this topic
#1
jmoorhou
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Posted 12 November 2014 - 11:38 PM
Diagnosed 3/2014 WBC 28 Non detectable within 3 monthsGleevec 400 mg 5/2014 one hour after dinner really improves nausea300 mg 12/15/2016200 mg and 300 mg Gleevec 2/25/2017 (after 3 years on Gleevec) For last four months taking 300 mg per day. Last CMC showed liver enzymes elevated, went to a good Naturopath and he recommended 4 Tumeric, 10,000 mg Vitamen D, and 3 milk thistle (silymarin) daily. Also use One<p>Day Detox Dandeloin tea, and Nettle Tea and a slice of ginger every day...in two months liver tests were below normal.Janis
#2
hannibellemo
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Posted 16 November 2014 - 10:08 AM
Try sleeping on a wedge. It doesn't have to be 12" high (very uncomfortable), the one I have is 5" at its highest point but is 36" long so the incline is very gradual. I got mine at amazon from Sleep Science but there are several others to choose from.
Good luck!
Pat
Pat
"You can't change the direction of the wind but you can adjust your sails."
DX 12/08; Gleevec 400mg; liver toxicity; Sprycel 100mg.; CCyR 4/10; MMR 8/10; Pleural Effusion 2/12; Sprycel 50mg. Maintaining MMR; 2/15 PCRU; 8/16 drifting in and out of undetected like a wave meeting the shore. Retired 12/23/2016! 18 months of PCRU, most recent at Mayo on 7/25/17 was negative at their new sensitivity reporting of 0.003.<p>
#3
gerry
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Posted 16 November 2014 - 08:32 PM
I wound up taking my Gleevec in the morning as I used to get throat issues through the night with the edema. The change meant the fluid retention would happen around my ankles instead.
#4
jmoorhou
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Posted 17 November 2014 - 01:28 AM
Gotta love this stuff....(gleevec)....a hard thing to love....
Diagnosed 3/2014 WBC 28 Non detectable within 3 monthsGleevec 400 mg 5/2014 one hour after dinner really improves nausea300 mg 12/15/2016200 mg and 300 mg Gleevec 2/25/2017 (after 3 years on Gleevec) For last four months taking 300 mg per day. Last CMC showed liver enzymes elevated, went to a good Naturopath and he recommended 4 Tumeric, 10,000 mg Vitamen D, and 3 milk thistle (silymarin) daily. Also use One<p>Day Detox Dandeloin tea, and Nettle Tea and a slice of ginger every day...in two months liver tests were below normal.Janis
#5
Pin
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Posted 18 November 2014 - 03:41 AM
The only thing that works for me is to eat a very low sodium diet. Works on all fluid retention including eye puff, but is very hard to do as most packaged foods eg. cheese, canned foods are high in sodium. I found that the eye puffiness settled after about 6 months or so and is now only an issue if I eat high sodium foods like takeaway.
Diagnosed 9 June 2011, Glivec 400mg June 2011-July 2017, Tasigna 600mg July 2017-present (switched due to intolerable side effects, and desire for future cessation attempt).
Commenced monthly testing when MR4.0 lost during 2012.
2017: <0.01, <0.01, 0.005 (200mg Glivec, Adelaide) <0.01, 0.001 (new test sensitivity)
2016: <0.01, <0.01, PCRU, 0.002 (Adelaide)
2015: <0.01, <0.01, <0.01, 0.013
2014: PCRU, <0.01, <0.01, <0.01, <0.01
2013: 0.01, 0.014, 0.016, 0.026, 0.041, <0.01, <0.01
2012: <0.01, <0.01, 0.013, 0.032, 0.021
2011: 38.00, 12.00, 0.14
#6
Happycat
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Posted 20 November 2014 - 08:17 PM
Yes, Yes, Yes!!! I got a free sample when I bought makeup a few weeks ago. I actually came over here to post about it. It's been fabulous for me! I use it once per day, in the morning, under my makeup. The puffiness has decrease a good 75% or so. It's almost normal. I am flirting with the idea of using morning and night to see if it will control it completely.
Anyway, the product is from Clinique, and called All About Eyes. It is designed to reduce puffiness. Give it a try. It's the best thing that has worked for me.
Happycat
#7
winespritzer
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Posted 23 November 2014 - 11:26 AM
Hi,
I sleep on a wedge and tried very hard to reduce the sodium in my diet. I've been on 100mg Sprycel for 10 months now and think the puffiness has diminished.
I eat the hot and sour soup about once a week and add boiled water to reduce the saltiness. I also began loading up my food with vinegar. I was craving it so maybe my body was telling me something.
I also think that exercising and drinking more water has helped me. Took a very long time to do that exercising though but seeing the benefits is motivating me.
Perhaps a coincidence but when I began 3 mos ago, I was always out of breath. My rbc's were low normal. Maybe now they are normal. All I know is that I can talk while on the treadmill.
Good luck.
Happy Thanksgiving,
Winespritzer - also started having a glass/week of red wine again!!!
CML History....
DX-1/14....wbc....55....100mg Sprycel-1 wk after DX....periorbital edema, fatigue,
.385-4/14
.365-7/14
.13-10/14
.11-1/15
.045-4/15
.07-7/15
.06-10/15
.04-1/16
0.00- 4/16-10/17
70mg Sprycel...11/4/17....40 mg prednisone (7 days)....thoracentisis...10/26/17
tremendous reduction w periorbital edema and fatigue
#8
Susan61
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Posted 24 November 2014 - 06:35 PM
I never got rid of the puffiness, but its true about how you sleep. When I can sleep on my back on 2 pillows my eyes are not too bad, but I like to sleep on my right side. I always have the real puffy right eye no matter what I do. I put ice packs on my eyes before I apply make-up. Will have to try that Clinique All About Eyes.
#9
SandyG353
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Posted 09 December 2014 - 07:04 PM
My daughter used to have very puffiness around the eyes. I have made dinner for her and ordered dinner from a chef that uses no salt in the recipes. I often bring dinner to her house prepared without salt. The next day she doesn't have puffiness around her eyes. Sometimes we test something like a barbequed chicken from Kings, and have found that there is salt in it because the puffiness around the eyes return.
Sandy
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