I've tried all the "eye puffiness" remedies, now on Preparation H. And I took a sinus allergy pill (just regular OTC), and that has worked the best so far, but hate to take every day.
Any miracle cures for periorbital edema
Posted 12 November 2014 - 11:38 PM
Posted 16 November 2014 - 10:08 AM
Try sleeping on a wedge. It doesn't have to be 12" high (very uncomfortable), the one I have is 5" at its highest point but is 36" long so the incline is very gradual. I got mine at amazon from Sleep Science but there are several others to choose from.
"You can't change the direction of the wind but you can adjust your sails."
DX 12/08; Gleevec 400mg; liver toxicity; Sprycel 100mg.; CCyR 4/10; MMR 8/10; Pleural Effusion 2/12; Sprycel 50mg. Maintaining MMR; 2/15 PCRU; 8/16 drifting in and out of undetected like a wave meeting the shore. Retired 12/23/2016! 18 months of PCRU, most recent at Mayo on 7/25/17 was negative at their new sensitivity reporting of 0.003.<p>
Posted 16 November 2014 - 08:32 PM
I wound up taking my Gleevec in the morning as I used to get throat issues through the night with the edema. The change meant the fluid retention would happen around my ankles instead.
Posted 17 November 2014 - 01:28 AM
Gotta love this stuff....(gleevec)....a hard thing to love....
Posted 18 November 2014 - 03:41 AM
Diagnosed 9 June 2011, Glivec 400mg June 2011-July 2017, Tasigna 600mg July 2017-present (switched due to intolerable side effects, and desire for future cessation attempt).
Commenced monthly testing when MR4.0 lost during 2012.
2017: <0.01, <0.01, 0.005 (200mg Glivec, Adelaide) <0.01, 0.001 (new test sensitivity)
2016: <0.01, <0.01, PCRU, 0.002 (Adelaide)
2015: <0.01, <0.01, <0.01, 0.013
2014: PCRU, <0.01, <0.01, <0.01, <0.01
2013: 0.01, 0.014, 0.016, 0.026, 0.041, <0.01, <0.01
2012: <0.01, <0.01, 0.013, 0.032, 0.021
2011: 38.00, 12.00, 0.14
Posted 20 November 2014 - 08:17 PM
Yes, Yes, Yes!!! I got a free sample when I bought makeup a few weeks ago. I actually came over here to post about it. It's been fabulous for me! I use it once per day, in the morning, under my makeup. The puffiness has decrease a good 75% or so. It's almost normal. I am flirting with the idea of using morning and night to see if it will control it completely.
Anyway, the product is from Clinique, and called All About Eyes. It is designed to reduce puffiness. Give it a try. It's the best thing that has worked for me.
Posted 23 November 2014 - 11:26 AM
I sleep on a wedge and tried very hard to reduce the sodium in my diet. I've been on 100mg Sprycel for 10 months now and think the puffiness has diminished.
I eat the hot and sour soup about once a week and add boiled water to reduce the saltiness. I also began loading up my food with vinegar. I was craving it so maybe my body was telling me something.
I also think that exercising and drinking more water has helped me. Took a very long time to do that exercising though but seeing the benefits is motivating me.
Perhaps a coincidence but when I began 3 mos ago, I was always out of breath. My rbc's were low normal. Maybe now they are normal. All I know is that I can talk while on the treadmill.
Winespritzer - also started having a glass/week of red wine again!!!
DX-1/14....wbc....55....100mg Sprycel-1 wk after DX....periorbital edema, fatigue,
70mg Sprycel...11/4/17....40 mg prednisone (7 days)....thoracentisis...10/26/17
tremendous reduction w periorbital edema and fatigue
Posted 24 November 2014 - 06:35 PM
Posted 09 December 2014 - 07:04 PM
My daughter used to have very puffiness around the eyes. I have made dinner for her and ordered dinner from a chef that uses no salt in the recipes. I often bring dinner to her house prepared without salt. The next day she doesn't have puffiness around her eyes. Sometimes we test something like a barbequed chicken from Kings, and have found that there is salt in it because the puffiness around the eyes return.
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