For those that had huge spleens at diagnoses how long did it take to heal? I am 6 weeks since diagnoses and my spleen which after the first week felt great is starting to become uncomfortable again. Last week my blood numbers were all good and my doctor said he could not feel the spleen. Why is the pain returning? I plan to call the doctor tomorrow just wanted other opinions. Maybe it isn't the spleen but it sure feels like it.
Spleen Pain Healing Time
Started by
rcase13
, Nov 11 2014 12:42 PM
7 replies to this topic
#1
rcase13
-
- Members
-
- 523 posts
Advanced Member
- LocationCharlotte, NC
Posted 11 November 2014 - 12:42 PM
10/01/2014 100% Diagnosis (WBC 278k, Blasts 6%, Spleen extended 20cm)
01/02/2015 0.06% Tasigna 600mg
04/08/2015 0.01% Tasigna 600mg
07/01/2015 0.01% Tasigna 600mg
10/05/2015 0.02% Tasigna 600mg
01/04/2016 0.01% Tasigna 600mg
04/04/2016 PCRU Tasigna 600mg
07/18/2016 PCRU Tasigna 600mg
10/12/2016 PCRU Tasigna 600mg
01/09/2017 PCRU Tasigna 600mg
04/12/2017 PCRU Tasigna 600mg
10/16/2017 PCRU Tasigna 600mg
01/15/2018 PCRU Tasigna 600mg
Cancer Sucks!
#2
Trey
-
- PS Beta Group
-
- 1,705 posts
Advanced Member
- LocationSan Antonio, Texas
Posted 11 November 2014 - 01:41 PM
The enlargement causes spleen damage which must heal. It is not simply a matter of returning to regular size. The healing takes time, probably several months.
#3
TeddyB
-
- Members
-
- 203 posts
Advanced Member
Posted 11 November 2014 - 02:15 PM
I felt discomfort for a long (many months) time after diagnosed, even though it shrank into place within 6 weeks or so.
#4
Lucas
-
- Members
-
- 215 posts
Advanced Member
Posted 11 November 2014 - 02:30 PM
it takes some time. my big spleen returned to normal size in 8 weeks (i think. it was near normal in week 6. does anyone took longer than me to get the spleen back to normal?), i think. but the discomfort took at least one more month
#5
JPD
-
- Members
-
- 258 posts
Advanced Member
Posted 11 November 2014 - 03:54 PM
agreed with above. It just takes some time to return to normal.
January 15: .53%
April 15: .78%
July 15: 1.1% - upped dosage to 400mg after this test
Oct 15: .85%
December 15: .28%
March 16: .29%
July 16: .34%
October 16: .11%
January 17: .081%
April 17: .055%
July 17: .135%
Oct 17: .008%
#6
jmoorhou
-
- Members
-
- 314 posts
Advanced Member
- LocationOutside of San Francisco
Posted 12 November 2014 - 11:34 PM
About six months..
Diagnosed 3/2014 WBC 28 Non detectable within 3 monthsGleevec 400 mg 5/2014 one hour after dinner really improves nausea300 mg 12/15/2016200 mg and 300 mg Gleevec 2/25/2017 (after 3 years on Gleevec) For last four months taking 300 mg per day. Last CMC showed liver enzymes elevated, went to a good Naturopath and he recommended 4 Tumeric, 10,000 mg Vitamen D, and 3 milk thistle (silymarin) daily. Also use One<p>Day Detox Dandeloin tea, and Nettle Tea and a slice of ginger every day...in two months liver tests were below normal.Janis
#7
rcase13
-
- Members
-
- 523 posts
Advanced Member
- LocationCharlotte, NC
Posted 14 November 2014 - 10:55 PM
Wow I am obviously impatient. I will tough it out. It is just odd that it stopped hurting for a couple weeks and then came back. Mine was a particularly bad case. It was huge and parts of it had died according to the emergency room doc. But all my hematologists insist it will heal just fine.
10/01/2014 100% Diagnosis (WBC 278k, Blasts 6%, Spleen extended 20cm)
01/02/2015 0.06% Tasigna 600mg
04/08/2015 0.01% Tasigna 600mg
07/01/2015 0.01% Tasigna 600mg
10/05/2015 0.02% Tasigna 600mg
01/04/2016 0.01% Tasigna 600mg
04/04/2016 PCRU Tasigna 600mg
07/18/2016 PCRU Tasigna 600mg
10/12/2016 PCRU Tasigna 600mg
01/09/2017 PCRU Tasigna 600mg
04/12/2017 PCRU Tasigna 600mg
10/16/2017 PCRU Tasigna 600mg
01/15/2018 PCRU Tasigna 600mg
Cancer Sucks!
#8
Jerry.s
-
- Members
-
- 128 posts
Advanced Member
Posted 18 November 2014 - 06:58 PM
Well I went in for my side pain my docter thinks it's my spleen . My pain has also come and gone and back again as well . I am at my 7 week mark of taking gleevec and I hope it's nothing serious my numbers keep getting better. They want to check my spleen again tomorrow morning with a ct scan. Prayers my way please
1 user(s) are reading this topic
0 members, 1 guests, 0 anonymous users
