I have been taking Gleevec for 8 years and I have had the usual feet, hands and rib area muscle spasms. Last week I ended up at the hospital because I had a severe muscle spasm in my throat that made me not be able to swallow or breathe at the time. It left me with a sore throat and a lump beside my esophagus. It still hurts to swallow sometimes. Has anyone else had this happen to them? I am having an ultra sound tomorrow to look for damage
severe muscle spasm in throat with Gleevec
Posted 10 November 2014 - 04:47 AM
Posted 10 November 2014 - 05:25 PM
It could actually be a muscle spasm or cramp as you suggest, and trying to stop one there by stretching it out would be difficult. The "damage" if any would be a strained muscle, but it just needs time to heal so I would not be concerned about any longer term damage to the tissue. But spasms which last for extended periods can recur more easily in the same spot, so be careful in whatever way you can be to avoid another one. I have had odd muscle cramps in muscles I did not even know I had until then, and they can be painful and difficult to stop. Overall the key is to stop them quickly by stretching the muscle, but throat muscles would have been difficult.
Posted 11 November 2014 - 06:26 PM
Diagnosed 9 June 2011, Glivec 400mg June 2011-July 2017, Tasigna 600mg July 2017-present (switched due to intolerable side effects, and desire for future cessation attempt).
Commenced monthly testing when MR4.0 lost during 2012.
2017: <0.01, <0.01, 0.005 (200mg Glivec, Adelaide) <0.01, 0.001 (new test sensitivity)
2016: <0.01, <0.01, PCRU, 0.002 (Adelaide)
2015: <0.01, <0.01, <0.01, 0.013
2014: PCRU, <0.01, <0.01, <0.01, <0.01
2013: 0.01, 0.014, 0.016, 0.026, 0.041, <0.01, <0.01
2012: <0.01, <0.01, 0.013, 0.032, 0.021
2011: 38.00, 12.00, 0.14
Posted 17 November 2014 - 12:04 PM
Posted 20 November 2014 - 08:55 PM
Well, there can be other problems, not necessarily Gleevec-related. My daughter has a disease called EoE. We only discovered she had it when food started getting stuck in her throat. The throat swells up over time, causing food to get stuck. At one point, we ended up in the emergency room because she insisted she couldn't breathe (she has asthma, too). Her O2 levels were good, so I figured it was actually a panic attack and not asthma. No idea if the EoE contributed to that feeling, or if it was only a panic attack.
Anyway, the point is that not everything we experience can be chalked up to CML or side effects of TKIs. Best to get it checked.
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