Hi kat, the fibre should help with the diarrhoea - give it a bit more bulk so to speak. Can't remember if you're taking a probiotic as well. If you can get your gut bacteria right it might help with that particular side effect. :-)
*.Pcr results.
Started by
TeddyB
, Oct 09 2014 09:19 AM
106 replies to this topic
#102
gerry
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Posted 19 October 2017 - 05:04 PM
Good news on the negative teddy. My second doc only did one bmb but always wanted to check my spleen even though it had never been enlarged, even prior to diagnosis. Latest doc doesn't bother.
#103
kat73
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Posted 20 October 2017 - 12:28 PM
Thanks for the tip, Gerry!
Dx July 2009 on routine physical. WBC 94. Started Gleevec 400 mg Sept 2009. MMR at 2yrs. Side effects (malaise, depression/anxiety, fatigue, nausea, periorbital edema) never improved. Kidney issues developed because of Gleevec. Switched to Sprycel 70 mg in Aug 2011. Above side effects disappeared or improved. Have been MR3.5 - 4.5 ever since. Two untreated pleural effusions followed by one treated by stopping Sprycel Jan 2017. After 9 weeks, PCR showed loss of MMR; re-started Sprycel at 50 mg and in 3 months was back to <0.01% IS. Pleural effusion returned within a couple of months, same as before (moderate, left side only). Stopped Sprycel 50 mg for 12 weeks; pleural effusion resolved. At about a monthoff the drug, PCR was 0.03; at 11 weeks it was 2.06 - lost CCyR? Have returned to 50 mg Sprycel for 3 weeks, intending to reduce to 20 mg going forward.
#104
TeddyB
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Posted 10 December 2017 - 03:56 PM
Good news on the negative teddy. My second doc only did one bmb but always wanted to check my spleen even though it had never been enlarged, even prior to diagnosis. Latest doc doesn't bother.
Thanks 
#105
LouiseS
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Posted 11 December 2017 - 12:20 PM
Hi Teddy
Have you tried acupuncture for your nausea? Not sure it will work for TKI induced nausea but it worked wonders for a friend who had terrible pregnancy nausea and I know it has helped patients suffering nausea on IV chemo. Best Louise
Have you tried acupuncture for your nausea? Not sure it will work for TKI induced nausea but it worked wonders for a friend who had terrible pregnancy nausea and I know it has helped patients suffering nausea on IV chemo. Best Louise
#106
TeddyB
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Posted 12 December 2017 - 05:40 PM
Hi Teddy
Have you tried acupuncture for your nausea? Not sure it will work for TKI induced nausea but it worked wonders for a friend who had terrible pregnancy nausea and I know it has helped patients suffering nausea on IV chemo. Best Louise
I have not, but keeping away from alcohol, spicy foods, fatty foods and some raw vegetables seem to help, thanks for the tip though
#107
TeddyB
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Posted 09 January 2018 - 01:53 PM
Hope everyone had a great Christmas, i know i did, too much aquavit (within reason of course) and good food
The fight continues, will stick to 400mg a while longer, and probably wait until i can get a few PCRU`s in a row before cutting down to 300mg.
Happy new year 
International Scale:
BCR-ABL1/ABL1 BCR-ABL/GUS
04.11.12 76% 21%
06.14.12 17% 10%
07.26.12 3% 3%
10.24.12 0.10% 0.08%
01.15.13 0.014% 0.01%
04.11.13 0.014% 0.01%
07.16.13 0.032% 0.03%
09.12.13 0.021% 0,02%
12.04.13 0.013% 0,01%
03.05.14 0.017% 0.02%
06.11.14 0.025% 0.02%
09.12.14 0.018% 0.02%
12.11.14 0.031% 0.03%
03.23.15 0,014% X.XX%
15.06.15 0,013% X.XX%
16.09.15 0,01% X,XX%
16.12.15 0.01% X.XX%
16.03.16 0.01% X.XX%
xx.06.16 PCRU
12.09.16 0.015%
xx.01.17 PCRU
xx.04.17 0.02%
xx.06.17 0.02%
xx.09.17 PCRU
xx.11.17 0,01%
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