4 replies to this topic

[August1]

Hi everyone,

Hope you're all doing well. I just got my latest PCR results after 25 months of treatment. 

 

I started on 600 mg Gleevac and have been taking 100 mg Sprycel for the past year. I had hoped for better response but I'm not all that surprised. This has been pretty consistent with my rate of response all along. At least on the positive side, I am still going in the right direction and this is the first time since starting Sprycel that all of my other counts are in range. 

 

Results - (IS)

18 months - 5.5%

11 months - 1.062%

14 months - 0.9272% - (CCyR FISH)

15 months - 0.608%

19 months - 0.394%

25 months - 0.208%

 

Advice or feedback is welcome. Considering if a change to another TKI (Tasigna) might be better or if I just go forward and hope for better results at the next test. Have my oncologist appt. next week to discuss as well. 

 

Take care,

 

[Trey]

I would not change anything.  Lumber on.

[August1]

Thanks, Trey,

I think that's the plan and likely what my oncologist will recommend as well.

[scuba]

I would not change anything.  Lumber on.

 

Hey Trey - maybe Bill should try 8 grams Curcumin and watch his 0.208% drop to 0.020% in 3 months time!

[JPD]

Its still going down, so my rookie ass would say leave it be.  Slow and steady wins the race... take the pill, live your life.